Hi, after 10 yrs am back on sulfasalazine and have just started Abatacept 4 was ago, am noticing side effects have you any experiences?

[MazP]

Hi, after 10 yrs, I am back on sulfasalazine my original wonder drug, it was my fab drug, got me moving and I guess I’ve compared all others to it , I’ve done 3/12 it’s ok, less pain, more movement

At the same time I had to get funding for my 4th biologic !!!anxiety provoking, and took 4 months !!! so have recently started Abatacept. Overall doing ok, still on steroids/ pain relief etc, I get energy daily fir about 5/10 mins which is fab! But I seem to have changed taste metallic?! Lots of exhaustion/fatigue, and if I have been out with friends for a few drinks I feel quite unwell for 24 hours.

Has anyone got experience of this? Is it like methotrexate ( my personal worst drug)?

Thanks

M

[Neverending63]

I had side effect of a nasty rash from sulphalazine so didn’t take it for more than a week. So it was worse than methotrexate for me.

[Amy65]

Hi I noticed on these biologics if u drink it knocks u of the next day I'm on biologics also and 1shandy and my head spins lol amy

[Hidden]

Sorry have no knowledge of abatacept but have just been offered sulfa or lef as alternatives to methotrexate. Does that mean you had no side effects on sulfasalazine, esp nausea? Thanks.

[Mistydawn]

I did/do well on Abatacept. It has been a wonder drug for me and worked fairly quickly. However, after about 4 months my vertigenous migraines returned after years of remission. Now I inject Abatacept every two to three weeks with my consultants approval. I am a petite lady and it was felt the standard dose may be too high for me weekly. Plus at my last consultation my RD was well controlled. Hope it works for you