Hi I am new to this site. I have been taking Humira... - NRAS

NRAS

36,566 members45,171 posts

Hi I am new to this site. I have been taking Humira for sometime now and I wonder if anyone else worries about the possible side effects.

Sam59 profile image
11 Replies

I ask because my teeth are causing problems and my dentist blames Humira. He is obviously not a fan of this type of drug . He also does not have RA.

Written by
Sam59 profile image
Sam59
To view profiles and participate in discussions please or .
Read more about...
11 Replies
julieporter profile image
julieporter

Hi Sandra

Welcome to the site

Although not on Humira yes i do worry about the MTX i take all the time.However to balance this i remember what life was like without it!!It's OK your dentist disliking the drug but he doesn't have to live with RA.If it helps you then i say carry on

Take care

Julie

little_em18 profile image
little_em18

Hello Sandra!

I was on Humira for a couple of years and did not really have that many side effects. I found the injection very painful and got a raised red rash which lasted several days once I had had the injection. I came off the Humira because it was felt it was not working for me. I regularly have problems with my jaw due to arthritis and my dentist is always asking about what medicines etc I am on before he will do any treatment. He always likes me to check with my consultant when he suggests any treatments just incase. It is awful that they dont understand as much because they dont suffer with arthrits.

If you have any other questions about Humira, I am happy to help :) x

Gina_K profile image
Gina_K

Hi Sandra,

I am on Humira injections a couple of years now and so far so good. The only thing I am really worried about is my immune system and of course my liver, but I am so well monitored with monthly blood tests, I am sure any abnormality would be picked up quickly.

I also take 1 plaquinil tab daily and 20 mg mtx weekly. My bloods are all within normal range and no rashes or otherwise, although one injection once gave me a very long lasting bruise on Tummy! So aware of risks but not too concerned, anything is better than irriversible joint damage!!! which I got anyway, weel reversible but surgically.

Good luck hon, be glad you are being offered anti tnf.

Gina.

LavendarLady profile image
LavendarLady

Not had any problems with teeth and the anti tnf drugs, but my GP did tell me that MTX does affect your teeth.

I have also had bruises on my tummy through being a bit cack handed with the MTX syringe but when I mentioned it to the surgery nurse, she told me not to worry as it is quite common and won't cause any other problems.

I agree , anything is better than the constant pain and stiffness of RA.

LavendarLady x

CathySmith profile image
CathySmith

I am considering taking Humira.My Rheumy has been wanting me to for months, I am in such horrible pain but I am scared it will make my hair come out and its thin as it is.Does anyone have this problem taking Humira????Plz reply i am desperate...

cathy

Sam59 profile image
Sam59

HI Cathy

I have been taking Humira for several years and as mentioned earlier I worry about the effect on my teeth. I did stop taking Humira for several months when I had my knee replaced and did consider not going back on it . However gradually I realised that I was not feeling to good so started the injections again. Now I do feel better. Not sure that this helps you but it is good to know how others are affected. Good luck if you decide to try it.

medieval-ali profile image
medieval-ali

Hi, I have just found your cpmment on the web as I am on Humeria and now having problems with my teeth, can you tell me if anything came of your experience with this drug.

Thanks

Alison

Breaker1 profile image
Breaker1 in reply to medieval-ali

Hello, I just wanted to chime in on the issue if taking Humira affects your teeth. I have have been taking Humira for many years for treatment of Severe UC. I have always had excellent teeth with no real issues my entire life. Now I find myself with MAJOR dental issues , 1 tooth has fallen out, and as of today, I need 3 root canals (with crowns).

Bottom line, it's devastating ! My dentist told me that my gums were very healthy, but that my teeth were just failing, and told me it was due to the medications I am taking...... She has seen this before. I'm stopping the Humira all together, and am going to a Holistic doctor I have heard is amazing !! I'm done with Pharmaceuticals that have such devastating side effects.

AndyMac69 profile image
AndyMac69 in reply to Breaker1

I’m 48 and never had more than a few tiny cavities that were fixed with a simple filling. I’ve been or Humira now for about 6 years for Chrohns disease. Since being on Humira I’ve had a lot of dental problems. I’ve had a couple of teeth that just all of a sudden fell out. I’m sure it’s due to the medicine but without the medicine I’d be in a lot worse shape.

shaun67 profile image
shaun67

was on humira and eventually got pnumonia after having pleurisy 8 times.It can affect the chest and lungs

Peachbby profile image
Peachbby

Hello, I have RA and my rheumatologist have been pushing biologics because I'm on 3 medications that I have been on since 2005 (Plaquenil and Methotrexate), then in 2007-2008 timeframe added 5 mg of Prednisone - now on extended release 4 mg prescribed, but was able to lower to 2 mg). I work a lot with my hands as I am a PT, so it is pertinent that I can use my hands optimally. I had a bad time from 2012-2014 after a flue shot - also had bad absces under a gold cap that I had for over 30 years that required a root canal - wish I didn't do it, but at the time I was in a lot of pain. I do not take flue shots anymore since that happened. Now I'm better, not taking MTX, just the Plaquenil, 300mg and 2mg Prednisone. Working on being off Prednisone. My doctor thinks that Humira would help with slowing down the deterioration; however, I am functioning well right now. I am thinking that I will turn this offer down because I am doing quite well and I have read some horrible stories with Humira lawsuits. I mean some people had awful reactions with just 1 or 2 injections. I don't think it's worth it unless you're in so much pain that you have no life so to speak of, then the risk is worth it.

You may also like...

Hi I am new to this site...I am about to move to injections. Can anyone share their experience

i have been asked if i want to take etanercept as a weekly jab, adalimumab as a fortnightly jab and

Hi i am new member from the midlands of uk. Have had RA for about 6 years. Retired x

Have had R for about 6 yeats & been ok on MTX but now have included Hydroxychloraquine & hoping it...

Is anyone else have or had side effects with Leflunomide?

I have been on Sulphasalazine and MTX with horrible sideeffects, now on Leflunomide and after a...

hi I am new to R A and have been reading about flair ups I have got pain all the time with no break from it

Hi new to site, Anyone on Humira & mtx and suffering from Oedema in legs/ankles?

my calves have gone down quite a bit but only because i bought a circulation booster and have been...