Biologic update: I had the flare up from hell over... - NRAS

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Biologic update

HevJ profile image
HevJ
9 Replies

I had the flare up from hell over Christmas and really appreciated talking on here. Just to update - I started Benepali almost 3 weeks ago. Oh my- what a difference already!!! I now have movement in all joints and feel so much better.

Once again thank you to everyone for your support.

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HevJ profile image
HevJ
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9 Replies
popsmith1874 profile image
popsmith1874

That's great keep up the good health xxx

Mandalou profile image
Mandalou

Very nice to hear. Really pleased you are doing well.

Mx

Doughnut61 profile image
Doughnut61

Great news 😘

Ruth12345 profile image
Ruth12345

Good news. Thanks. Long may it last. ☺

SnooW profile image
SnooW

That sounds like good stuff! Hope it continues to work well for you.

NeonkittyUK profile image
NeonkittyUK

Excellent news! I know from experience that Enbrel (what many people were given prior to Benepali) that it worked for me within a few hours. Like magic. I am on something different now which is working very well. Long story .. another time.

HevJ profile image
HevJ in reply to NeonkittyUK

Am glad to hear yours is working well. Can I ask are you on methotrexate with it? I am and am hoping over the coming months I can reduce the MTX!

NeonkittyUK profile image
NeonkittyUK

Hi Hev, I am on 15mgs Mtx sub cut and want to come off it. Mtx lost its efficacy about 5 years ago when it was my sole RA med (it worked great for eight years then slowly waned) and I know that Rituximab is holding back the RA by itself. I need to talk to my rheumy nurse next week when I have my next infusion. I think we will be able to reduce right down but maybe not easy to convince them for us to come off the Mtx. NICE guidelines etc. x

HevJ profile image
HevJ in reply to NeonkittyUK

It’s not good when the MTX stops being so efficient!

Have you spoken yet to your nurse? When I next see my consultant in May I am going to ask about reducing the MTX - it was not being effective on its own for the past year.

Keep me posted x

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