No pain relief aaaarrrhh

[sabrejan]

Hi all feeling a bit down today off work this week. Having horrendous flare my ESR 94 and CRP 54. Not been able to sleep since Sunday night. Few duvet days wouldn't mind but resting so painful nothing I take makes the pain go away even zap pain not helping with this one x

[nomoreheels]

Flares are the pits. Have you not been offered a general steroid injection? Just thinking with you knowing your inflammatory levels you must have seen a nurse? I'd ring your Rheumy nurse, see if you can be sandwiched in between appointments. Or failing that someone at your GP surgery should be qualified to administer them.

I hope you feel better soon Janet.

[sabrejan in reply to nomoreheels]

Hi had steroid injection on 10th Jan believe it or not just wondering if that has caused this flare very odd. Went to see Dr yesterday and they said to go for urgent bloods and dr rang before will results. My Rheimy spot not til 1st March. It's cause I'm on new medication I think been of leflunomide for two months so Rheims said got to be like this fir another month. Then I bet they will try to put me back in that awful stuff again methotrexate. I can't tolerate that feel sick for days even with anti nausea tablets and so depressed on it. Yes it helps with inflammation but at what cost x

[nomoreheels in reply to sabrejan]

Mmm, it's too long since your steroid injection for it to be a steroid flare so it seems as it's not helped. Are you prescribed an NSAID or adequate pain relief? If not you could ask joke GP if he thinks it's advisable?

I remember you didn't like MTX though I don't remember how many folic acid you were prescribed. You may recall I take 6 5mg, just not the day I inject. Did your Rheumy not suggest reducing the dose? I kno it doesn't suit very one but if you were having results it's a pity.

Have you had it confirmed you're flaring? I'm wondering rather than a flare it's simply that you're not controlled. You've not long been diagnosed & needed to start a new DMARD which won't have reached it's potential, could be that you've just not experienced control yet.

I hope you can get sorted either way. Take care.

[sabrejan]

Dr said it was confirmation of flare. Mex did get it under control my hubby did say at time when rheumatoid suggested me trying lef to first lower the dose of mex to see how I went but they said they had to see if I could tolerate led first so has to come off all mess etc u know their drill same old. I was in 5 mg 6 days too at that time x

[KatyDid]

So sorry to hear you're having such a hard time. I hope you can find something that helps soon. Thinking of you, Katy xx

[sabrejan in reply to KatyDid]

Thank you how r u doing. Got results if my bloods today too my ESR 94 and CRP 54 so guess my rheumy will want to see me when dr sends that. Oh the joys. When I first got told I had RA my ESR was 47 so odd don't know why I'm like this as had steroid injection on 10th weird hey guess that was a waste of time then. Hope ur walking better. I'm so hoping I sleep tonight I'm dead on my feet and really bored of resting up aaarrrrhh. Take care x x

[KatyDid in reply to sabrejan]

That sounds horrible. I really hope your rheumatologist can see you soon and you'll get something to help.

I'm OK, pain has been a little bit better this week, which is great. Hopefully LEF is working for me xx

[sabrejan in reply to KatyDid]

Thanks Katy so pleased ur starting to get better. Thank the Lordy my swelling off my right knee finally coming down after lots of ice heat etc you know the drill. Managed to get couple of hours sleep eventually from 4am to 6am so that's something. My right hand hurting a lot at the min. Do you think the LEF get worse before better is doing this. As I'm very stressed at the min due to exhaustion I have very upset tummy so guess lef going straight through me this morning. I take it a 6.30 pm with water and after my dinner. I haven't been out the door since Tuesday and that was only a visit to hospital to get my bloods done. I'm sitting on couch recliner with legs elevated with blanket feeling very sorry for myself. Waiting for rheumy call whenever that will be joke.

Are you still on mex and lef how much of each and are you so far tolerating the treatment. Do you put in weight?

When I was on mex and sulfasalasine I pot on over half a stone in couple of months. I've always been between 8.3 and 8.7 as I'm only small 5ft 3 and tiny frame so bring over 9st a lot for me as always been size 8 to 10. If ur talk you get away with bit of weight but not when ur s shortie.

All the best Janet