Hi, 4 months in on my journey with RA: Hello, Just... - NRAS

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Hi, 4 months in on my journey with RA

JohnHarveyV profile image
12 Replies

Hello,

Just saying hi as I have just signed up today after being advised to sign up from my Physiotherapist. I’m only four months in on my journey and I must say I have had my ups and downs with RA.

Any help and advice appreciated and like wise if I can help anyone else.

Kind regards

John

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JohnHarveyV profile image
JohnHarveyV
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12 Replies
JEM95 profile image
JEM95

Hello and welcome!

This is a wonderful place, it has helped me so much.

My Rheumy, GP, physio are all really important but they don’t have RA and experience all the symptoms, side effects and emotional aspects. I have learned so much about RA and how to live with it, how to manage it etc. The best thing though, is the support.

I hope you gain as much from being here as I have

JohnHarveyV profile image
JohnHarveyV in reply toJEM95

Thank you so much for your words of support, it means a lot. Together we can learn and overcome.

Doughnut61 profile image
Doughnut61

Hi and welcome, I was diagnosed with sero positive RA and Rheumy told me that mine was very aggressive 😞 I could not sit down without crying in pain and could not get out of bed without help!! I was in agony 😕 without the knowledge from this site i don’t think I would have coped 💕 Now I can work and see there is life after diagnosis and thank god that we have the drugs that can give us our life’s back😀 Good luck and hope you have a pain free journey x And thanks again to you all on this site that have helped xxx

JohnHarveyV profile image
JohnHarveyV in reply toDoughnut61

Thank you so much for your kind words, I’m please things are working out for you and I’m sure they will for me. It’s just a painful journey in the meantime. Thanks for welcoming me.

oldtimer profile image
oldtimer

Firstly welcome, although sorry that you have had to join us!

Secondly, remember that most people only post when they are having problems, so this forum doesn't often hear from people who are on medication and doing well.

Thirdly, look at the NRAS website - it's a mine of information that's helpful.

Fourthly, if you have a specific query, it often helps to put it in the search box where you will often find lots of previous discussion to the same query.

JohnHarveyV profile image
JohnHarveyV in reply tooldtimer

Thank you old timer, will check the site out.

Gnarli profile image
Gnarli

Hi John and welcome to the club you never wanted to join. This forum is peopled with lovely, informed, compassionate folk who know what living with our disease is like and are happy to share experiences and provide support. I have found it to be a lifesaver. Hugs

J

JohnHarveyV profile image
JohnHarveyV in reply toGnarli

Thanks J

BubbleMonkey profile image
BubbleMonkey

Hi! I'm quite new to the whole thing too. Diagnosed with my Palindromic Rheumatism back in the summer.

This forum has been wonderful for me. Even just knowing there are others out there with a similar issue is a huge comfort.

Welcome to the group. :)

JohnHarveyV profile image
JohnHarveyV in reply toBubbleMonkey

Thank you, as I’m struggling at the moment but we get there.

Doughnut61 profile image
Doughnut61

You have to believe x YOU WILL GET THERE 😘

Sharrelson profile image
Sharrelson

I am new also. I have appointment Tuesday with Rheumatologist to see what course or action we will take. It is good to have a place where others can support. Hope all goes well.

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