I was diagnosed with RA almost 5 years ago. Put on methotrexate and hydoxychloroquine which I was taken off. Methotrexate worked well for a couple of years. I then started getting sporadic flare ups over the last 18mths, shoulder was the worst - it felt dislocated, hands and neck.
They then tried sulphasalazine with the methotrexate , which after 3 weeks had a bad reaction too. Then in Sept leflunomide which 2 weeks in sent my liver enzymes rocketing. I was then taken off all meds to let my liver recover.
In the meantime while off the meds I had an op to remove a Morton’s neuroma from my foot. This had been diagnosed 6 years ago and had grown really large.
Over the past two weeks I’ve been assessed for biologics and found out today from my RA nurse that I am good to go.
I also had an orthopaedic app to follow up my op. Histology determines I did not have a neuroma after all - it was a very large rheumatoid nodule. This has concerned my orthopaedic consultant. Why did it not get picked up before and then why did it not respond to meds? Also my other foot is showing similar symptoms.
Has anyone has rheumatoid nodules removed surgically? Have they grown back?
Does anyone suffer with them at the base of their toes?
And I would love to hear from anyone on biologics. Do you still take methotrexate alongside?
I haven’t been on this site for many years. When I first joined I remember someone saying - we only appear when things are not going well....
I really would love to hear from fellow sufferers.