Anyone about to start methotrexate?: Hello I am new... - NRAS

NRAS

37,263 members46,132 posts

Anyone about to start methotrexate?

nessa11 profile image
8 Replies

Hello

I am new here and feeling very grateful to have found this board. I have rheumatoid arthritis

I have just found out I have severe wrist damage (very scary) and I am going to start on methotrexate tomorrow (also very scary)

I had an allergy to sulphasalazine so stopped that a couple of weeks ago

Anybody about to start on metho or recently started?

Am trying to think positive thoughts.

Gentle hugs

Written by
nessa11 profile image
nessa11
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Paula-C profile image
Paula-C

Thought I’d do a quick reply. Ive been on it since 2010. Apart from my hair thinning a little I’ve had no side effects at all. It’s the most used drug for RA. More people on it than other Dmards, so you will tend to see more reports of side effects. Good luck. xx

Kai-- profile image
Kai-- in reply toPaula-C

.

Agreed, Paula-C. 😌 🙏

Lots of positives ➕➕ (& positive thoughts ➕ 🙇‍♀️ 💭 ) about Methotrexate (MTX) 💊 , nessa11. 😌

If interested in exploring 🕵️‍♀️ 🔎 further, found these resources 📚 useful/ interesting 🤔 : healthunlocked.com/nras/pos... 🙏 🍀 🌺 🌞

.

Neonkittie17 profile image
Neonkittie17 in reply toPaula-C

I echo Paula's comments and I found I only had slight thinning of hair. x

It works. The usual 3 months to wait before you get full benefits ie pain relief.

I have had to stop at intervals due to it lowering white blood cell counts, the ones we depend on to fight any kind of infection.

I have thinned hair but it was thick before so not that noticeable!

Higher doses for me ie 15mg injection, caused sun burning. Yet oral dose that was higher did not.

Probably different for each person, so good luck.

Angela :-)

helixhelix profile image
helixhelix

Hopefully someone will pop up who is at the same point as you - and yes it's scary to start with. But 7 years in, MTX is my best friend and has given me my life back. I wouldn't be without it now! So do try to be positive as it can work wonders.

nessa11 profile image
nessa11 in reply tohelixhelix

Thank you so much for your replies and encouraging comments. I will start it tonight and will be super positive.

I am not sure how replying works. So not sure if I have replied to everyone. I hope so. Thanks again.

nessa11 profile image
nessa11

Thanks I am assuming methotrexate is my new best friend. 😀Took it last night and no nausea or other effects. Small dose to start with. 10mg. I checked out the links to the paddison program too. Thank you! Positive positive thinking. 🤓 I have had RA for nearly 20 years but have kept it under control with plaquenil and diet until about 18 months ago when it has really knocked me down. So have been feeling hopeless and in pain for a long time. Hopefully this is the start of chemical remission and a break from pain. 🤞

JayneN profile image
JayneN

Hi

I started on tablet form but didn't agree with me so was put on injections. Only been on them 5 weeks and can feel a difference already. I have ulcerative colitis so my RA is really bad when I have flare ups to the stage my wrist is completely damaged . I've been through so much with the UC nothing much really bothered me up until the RA. Real bad pain especially in the cold weather but apart from the feeling sick and feeling lethargic it's definitely working so just try it and see how it goes . I'm waiting for the 12 weeks to be over so fingers crossed I feel the benefit ... I too was like you , tbh I was wary and a little frightened but I can honestly say it's the best .... good luck 😀

Not what you're looking for?

You may also like...

About to start Methotrexate.....

I'm about to start Methotrexate in a month's time, I'm having to stop Sulpha due to some side...

Wait to start Methotrexate

I was just diagnosed and was supposed to start the Methotrexate. Because of COV 19 I am thinking of...

About to start Filgotinib

I am about to start Filgotinib, after lefludomide starting to have little effect. I was just...
Scocl profile image

Concerned about Methotrexate

Good Morning, My name is Geneen and I need to ask a few questions and I am really hoping for some...
Olmettig profile image

Methotrexate and Leflunomide

Hi. I have had RA for over 40 years (am 56 now) and am currently taking 5 tablets of Methotrexate...

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.