I got with me GP yesterday he ran ekg, lung X-ray, blood work and checked for clots. Said all looked good. I know what I feel though. Rheumy nurse returned call said not to take shot this week and some thing about Plaquenil Sp????. Anyone used that? I see them next week!!
How did it work?
Thanks Sheri
Yes plaquenil helped me. You do feel sickly for the first few days but then it goes off. Glad your tests were ok x
Yes thank you for responding! I will try just about anything
I did and at last They got the right combination!
One thing to watch for with Plaquenil is stomache and digestive issues. I was on all the dmards and found that Plaquenil and leflunomide made my digestive tract go bonkers. I could not digest food, and found I spent almost 8 hours a day in a bathroom. No good when trying to work. Sorry to be descriptive but felt like pooping acid. I know it works for some people but not all. If you have any side effects please do not hesisitate to contact your prescribing doctor or GP. They will like to know as it could mean something else in your diagnosis and overall care.
Scott
Thanks Scott I will it really scares me cause I'm all ready sensitive digestively speaking
Thanks
I know what you mean about breathlessness, recurs with me but as I've had tests like you, they don't seem concerned: worries me. I do wonder if part if disease itself; can inflame other tissues. Is plaquenil same as hydroxychloroquine, if so i don't seem to get many side effects unlike methotrexate which makes me nauseous, who knows, Ii'm pumping so much crap into myself it cld be mix of both 😀
All theses chemicals scare me as much as the disease. That's just bottom line truth.
But have to have them!!!
I was taking Hydroxychloroquine the other name for plaque I'll for about a year. They say you need to have your eyes checked annually.
I had blurred sight after 6 months and then around a year I started suffering from migraines. At this point it was stopped as well as the migraine.
From what I can see most people respond well to it. So try and persevere with it and make sure you have your eyes checked.
Ok thank you
I hope you are good now
Have a wonderful Thanksgiving
Migraines stopped as soon as I stopped hydroxychloroquin x
Tha
Ok that's scary. I hope all is good now. Did your vision restore fully?? Thank you for responding I am scared of all the meds!!!
Happy Thanksgiving
I was on hydrochloroquine for many years with (fairly) good control and minimal side effects.
I've been on it for five years, it's been great for me. I get my eyes checked every 9-12 months.
Thank you for being there. Have a blessed holiday. Let you know the outcome when I know it!!
I'm glad your rheumy team is on the "ball" and put you through many tests.
When you start plaquenil, it may make you visit the John more often, but this side effect wears off.
Also have your eyes tested so your eye doctor has a base line to judge if plquenil is affecting your eyes.
All the best to you
My Rheumy didn't put me through them my GP did. When I talked to Rheumy nurse all she said was stop injection. They would call pharmacy for plaque so I could start it. I said no I would go to appt next week and we would talk about it. There was no mention of eye test or anything. That's why I reach out to you so I have more support from you Angels and some of your knowledge is imparted on me. It's all I have and I thank you!!
An opthamologist will take photos of the back of your eyes & he will monitor if any plaquenil build up occurs. Your opthamologist will be the first to know if hydroxychloroquine (plaquenil) is safe for you.
Thank you
I'm anxious to see if they tell me that because it didn't seem that way!!!
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