Shortness Of Breath After Biologics Injection

[EnglishRose63]

Me again 🤔

I'm so sorry for being a pain.

The last 3 times of taking my biologics has caused some shortness of breath. It happens around a week after. I can feel fine all day but then on the 7th or 8th night after the injection my breathing gets worrying.

There's no pain in my chest, it just feels tight and I can't catch my breath and I'm constantly coughing. It lasts about an hour and I take deep breaths and have a warm drink and it will fade. The cough goes as well.

Luckily I had my yearly arthritis review at my gp's surgery with the nurse today at 11.30 and I mentioned it to her. She put that heart monitor thing on me and took my pulse and blood pressure and said all was fine. She said to let rheumatology know on Monday as it could be the adalimumab causing it.

Just wondering if anyone else has experienced shortness of breath with their biologics? 💜

[MadBunny]

Sorry to hear you are having problems. It's good that the nurse was on the ball with heart monitoring . Please do as the nurse suggests- contact Rheumatology on Monday as it definitely needs looking into. Sorry- didn't mean to sound like I was giving you orders 🤗

[EnglishRose63 in reply to MadBunny]

Hi MadBunny I'll definitely be phoning on Monday. I feel fine now, a bit chesty but not like the other night 😁

[Hidden]

Hi EnglishRose63

that must be a worry for you. Def needs checked out as posted by MadBunny

[Hidden in reply to Hidden]

Could it be an allergic reaction? Take care and let us know how you get on.

[EnglishRose63 in reply to Hidden]

I've been on them for a while now Fuzzy. I would've thought the side affects would have happened months ago if I was allergic to them?

[Hidden in reply to EnglishRose63]

Good point. I take it you got blood tests before starting on biologics? xx

[EnglishRose63 in reply to Hidden]

Blood tests were done yep 😁

[MorganCat in reply to EnglishRose63]

My side effects for sulfasalazine took over 4 weeks to appear . Slight little effects and I had an answer for all of them . My thoughts can’t be a reaction I’ve been on it ages . By the time I got the rash my liver alt over 100 then escalated to 1556 . Look up dress syndrome .

[Lolabridge in reply to MorganCat]

Ah yes I had a DRESS reaction to Sulfasalazine and ended up in hospital for 10 days. That was scary!

[Daisy70 in reply to Lolabridge]

What is Dress syndrome? I’ve been on Salazapyrin - same family as Sulphasazine? - for over ten yrs. No reactions.

[Lolabridge in reply to Daisy70]

It’s a serious reaction but as you’ve been taking Sulfa without problems for a long time you are unlikely to get it now.

[Daisy70 in reply to Lolabridge]

Thank you 🙏

[EnglishRose63 in reply to MorganCat]

Thank you MorganCat 😊👍 I'll Google that x

[EnglishRose63 in reply to MorganCat]

I wasn't great on sulfasalazine or hydroxychloriquine and then I went on bios. It's only the first biologics I've tried so hopefully next one will suit me. I'll look up dress syndrome x

[sylvi]

Speak to your rheumy as soon as they open tomorrow morning darling.xxxx

[EnglishRose63 in reply to sylvi]

Will do luvvy. I feel fine today except chesty. Strange 🤔

[Doglover202222]

Im also having problems with biologics ,I'm on entrapment,,I have tightness in my chest ,coughing and wheezing ,it's happened twice in the short time I have been using them and had to stop using them ,spoke to rheumatology now need to wait for an appointment to try new biologics as this one doesn't agree with me

[EnglishRose63 in reply to Doglover202222]

Ah blimey I suppose we have to just keep trying different ones then. Will get sorted one day 👍 x

[Doglover202222 in reply to EnglishRose63]

Hopefully ,I was diagnosed 7 years ago with psoriatic arthritis, but I constantly have trouble with meds ,one day I will have something I can tolerate fingers crossed

[EnglishRose63 in reply to Doglover202222]

Fingers crossed for sure 🤞 x

[PiperPiper in reply to Doglover202222]

I have given up all my meds trying to help with my PSA. Biologics have given me lichen planopilaris lost alot of my hair. So I'm trying to manage my condition as the best as I can without medication. All I can say from my point of view, any concerns keep pushing as I came up against alot of oh no the medication isn't to blame... When I saw TOP MAN ,he said the medication can change our DNA. So always beware of any changes in your body.

[Doglover202222 in reply to PiperPiper]

Yes it is very worrying ,especially as there's a risk of certain cancers ,I am thinking of stopping meds completely as its not worth the risk ,just concerned how I will manage the pain as previous meds didn't work and I was in agony unable to walk

[PiperPiper in reply to Doglover202222]

It's so hard as we are suffering with pain. in my case I couldn't keep losing my hair, I would rather suffer with the pain. I do know since I've stopped meds my toes have got more deformed, I can feel that in my footwear,but again that's my choice. Will have to see what specialist says in September as x rays were taken to see the difference from there to now.I've done alot of research of natural anti inflammatory ginger, turmeric. it's a personal choice, I really hope your team help you.

[EnglishRose63 in reply to PiperPiper]

I'd love to come off all ra meds but wouldn't have a clue as what else to take for pain. If we did come off them how would we prevent damage to our joints in the long run?

My rheumy nurse said "you'll always be in pain but our drugs do prevent damage" x

[Brushwork]

I often get a bit of a cough for a few days after mine, also itchy patch, it’s an allergic reaction for me. I take antihistamine and it helps.

[EnglishRose63 in reply to Brushwork]

Will your allergic reaction wear off eventually did they say? I don't mind the chesty cough but the shortness of breath scared me x

[RA22345]

That's very interesting ER3, I am getting very breathless recently and inject weekly. Maybe I should flag to Rheumatology team.

[EnglishRose63 in reply to RA22345]

What bios are you on RA22345? x

[RA22345]

Imraldi (adalimumab) same as you?

[Cheylann in reply to RA22345]

I thought that it was a JAK inhibitor not a biologic. Are they the same thing?

[KittyJ in reply to Cheylann]

It’s a bio similar Cheylann. Here are the jaks nras.org.uk/resource/jak-in...

[EnglishRose63 in reply to RA22345]

Adalimumab (amgevita). Confusing lol x