Sero+ and anti ccp+

[Doughnut61]

Hello you lovely people,

I was just wondering is there anyone on here that have had this and been blessed with remission?

I guess I'm living in hope?

[Yvettebloo]

Not there yet but living in hope too ❤️

[Hidden]

No, i wish, only diagnosed few months ago but love your dog so cute x

[Hidden]

Hi Doughnut61

I was in drug induced remission for about a year after diagnosis of seropositive RF and strongly seropositive anti-CCP. It took from Dec 2015 to early summer 2016 to feel better, but still very easily fatigued.

I believe putting me on a lower dose of MTX at the same time as suffering a new severe stress, contributed to the flare late this summer.

And I overexerted mysrlf too.

[Doughnut61 in reply to Hidden]

May I ask when you flare is it pain in all your joints?

[Hidden in reply to Doughnut61]

Yes, always. Hands, feet, wrists, ankles, knees, hips, neck, shoulders and a bit in the jaw too.

Last flare affected ligaments at collarbone-breastbone too. Tendons in neck that go to bone behind ear, affected too.

But I was left too long before intervention with early, aggressive treatment, so maybe it’s worse due to damage done at the start.

Flare this summer into autumn was not as bad as totally untreated, early RA that left me very incapacitated.

The course of disease is different for each person.

Hope that’s not depressing..

[Doughnut61 in reply to Hidden]

It is X but thank you for your honesty x

[nomoreheels]

I'm seropositive & was in medically induced remission for 3 years. Sadly not been back there since 2013 but I live in hope! I also hope you get there too, it's a great feeling.

Lovely pic. What's his/her name?

[Doughnut61 in reply to nomoreheels]

Thank you for your reply X Her name is Smudge she gives me so much joy❤️

[HDo2010]

Hi Dough

I've been in complete remission since July 2017. I'm not taking any RA med since July. By the way I did not follow traditional treatment (MTX, Biologic...) but alternative treatment (Natural)

Wish you the best

HDo

[helixhelix in reply to HDo2010]

Did you test positive for the rheumatoid factor and for the anti-CCP antibody?

[Doughnut61 in reply to helixhelix]

Yes I'm afraid so 😬

[cheshcat in reply to HDo2010]

My mom stayed in remission maybe a year, year and half or so after her biologic. But did flare back up and is now on plaquenil. She's doing well just on the plaquenil. She really didn't want to take another biologic (she's 67, had RA 30 years).

[LeeJayne in reply to HDo2010]

May I ask what alternative treatment you had please? I was trying to manage without meds but have been persuaded otherwise and will start on Abatacept soon. I'm have 'super-early' RA so it's thought this intervention may stop it.

[Doughnut61 in reply to HDo2010]

Wow that's amazing. Fab news X I so hope it continues .

[Doughnut61 in reply to HDo2010]

Wow !! That's amazing 👍😀

[helixhelix]

I'm anti-CCP positive and have been in remission for most of the time for the last 5 years.

[Cherub198889 in reply to helixhelix]

I think you should "scream from the roof tops" about being anti CCP positive & being able to reach remission..... OR at least write a post about it. In my darkest days when I posted as Suzannedale , I valued your opinion.

[Nettac in reply to Cherub198889]

Ha...I wondered where you'd gone! Good to see you.

[Cherub198889 in reply to Nettac]

[Gnarli in reply to Cherub198889]

Oh thank goodness. I thought you'd left forever. I hope you're doing well. Huge hugs

J

[Bookworm55 in reply to helixhelix]

I’m a bit confused as to what ‘in remission’ means. Is it a medical diagnosis and does it mean with or without medication? How is it defined?

[helixhelix in reply to Bookworm55]

Rheumatologists usually define it as a DAS score below 2.6, and either medically controlled remission (i.e. with drugs) or remission without them (quite rare for prolonged periods although it does happen.).

Patients describe it differently! ie Being symptom free.

[Vonnie10]

I’m now I remission thank you’d took me a while but I’m doing well 20weeks there about about benepali , wishing you a good outlook for your future.

[Doughnut61 in reply to Vonnie10]

Thank you x

[Kai--]

.

Yes, yes 👍👍 . . . kindly see 🕵️‍♀️ 🔎 additional practical information that may serve you well, 🍩 61:

• 'New to this....' (kymmie92): healthunlocked.com/nras/pos.......

• 'Do you think this is RA?' (Annieb24): healthunlocked.com/nras/pos...

• 'RA Newbie Introduction' (ennuitude): healthunlocked.com/nras/pos...

&, of course your previous post:

• 'Sero positive consultant tells me it's most aggressive and I will flare soon ☹️☹️☹️' (Doughnut61): healthunlocked.com/nras/pos...

.

There's more than enough hope — realistic hope for you & your 4-legged beloved 🐶. ☺️

.

We're not the only one's who've gone through this. 😯

There are others before us who've managed well & continue to manage well. 😌 🙏 👍

.

If you're interested in exploring 🕵️‍♀️ 🔎 further, consider skimming Resources I'd found helpful, which are in my profile: healthunlocked.com/user/kai-- (Merely click on the blue "Read more" text.) The list of References will appear. They were accumulated (over time) like a 'Table of Contents' of a book 📕 & are merely listed for easy skimming. 😌 🙏 ]

You're welcome to leisurely peruse 👓 👀 anything that sparks 💥 your interest. Or, happily, voraciously devour 🍖 🐕 anything that has you hungrily seeking more. 😁 ☺️

Or, If it's simply 'not your cup of tea' ☕️ , readily by-pass/ ignore. 🙏 😑

.

Another gal who may have you smiling 😊 ear to ear 👂👂 (& maybe even screaming with laughter 🤣 ) is: Roxana, 'The Sofia Vergara of Peru' (& now 'The States'), Improves Her Hashimoto's (Hypothyroid) & Rheumatoid Arthritis (RA): healthunlocked.com/thyroidu...

.

Her inspirational experience & practical, down to earth tips show us that there is 'a way'.

💃🏻🕺

It's something that can be overcome & handled well. 😌

Fear & uncertainty fall wayside. 🙏 🍀 🌺 🌞

Abundant hope & good cheer, 🍩 61. 🤗 ☺️

.

[Doughnut61 in reply to Kai--]

This is amazing X thank you so much for taking the time when I get the time I will be reading all the links 😘😘

[Kai-- in reply to Doughnut61]

.

👍

Very welcome, 🍩 61. 😌 🙏

Apologies 🙏 😔 , awful lot 📚 to wade 🏊‍♀️ through . . . 😳 😯

yet may be worthwhile if you glean some useful ideas 💡💡. 😌 🙏

There's another interesting conversation going on here ( healthunlocked.com/nras/pos... ), that might be of interest/ curiosity? 🤔

Merely supplemental perspectives/ context. 🤔

Wishing you the very best, 🍩 61, on this new leg of the journey. 🙏 🍀 🌺 🌞

.

[Doughnut61 in reply to Kai--]

You are so very kind ❤️

[Kai-- in reply to Doughnut61]

.

Tell that to the bodies 😵 😵 😵 in the basement . . . 😯

. . . just kidding, just kidding . . .

[There outside, under the rhododendrons . . . 😳 ]

J u s t . . kidding . . . 😆 😂

.

Bit too much 'Arsenic & Old Lace' ( 🎥 en.m.wikipedia.org/wiki/Ars... 🎭 ). 😂

.

[Cherub198889]

A positive anti CCP means you are seropositive. At least by Health Canada standards....so do what your doctors advise you to do. There are many people who live a full filled life with a positive anti CCP.

[Doughnut61 in reply to Cherub198889]

Thank you so much 😘

[Matilda_1922]

Me too I'm seropositve anti CCP but not there yet and also living in hope too.

Matilda x

[Bookworm55]

I was diagnosed in Feb 2017 with seropositive (anti CCP and RF) RD but once the mtx and hydroxychloroquine kicked in have been fairly symptom free - couple of swollen painful joints, bit of stiffness and fatigue. Extremely grateful but obviously no idea how long it will last.

[Doughnut61 in reply to Bookworm55]

I hope it lasts for you 👍

[Fra22-57]

I was told st one appointment I was now in remission and then felt like screaming at him as nothing had altered and still in agony. Next 3 month appointment heard him dictating letter to my GP saying unfortunately this lady is still has extreme RA...WHAT ??,

[Doughnut61 in reply to Fra22-57]

Can't call it remission if in pain surely?

[Fra22-57 in reply to Doughnut61]

I know and hands and wrists swollen like mad

[Doughnut61 in reply to Fra22-57]

Poor you 🙁 Wishing you well very soon xx

[Cherub198889 in reply to Fra22-57]

Sorry to read this Fra22-57. Are you able to find another rheumatologist who you can work with? I'm on my 3rd rheumatologist as my first one always made me feel "guilty" for not being in remission.

[Fra22-57 in reply to Cherub198889]

Well he is now jumping through hoops for me.had to get PALS involved thou when in hospital

[medway-lady]

Yes ! x

[Doughnut61 in reply to medway-lady]

Wonderful news 😘

[medway-lady in reply to Doughnut61]

Yes nearly 3 years. But I take the meds and still get the odd ache but nothing to talk about. Just remember to get on with life RA is a disease that cannot be cured ut is controllable. I'm sorry but don't believe its controllable or cured by diet as I've been Celiac ( medically diagnosed with blood test etc) and it made no diffeerence to me. I thikall things in moderation and weight plays a part too as does good pain relief at the start of all our journeys. A diagnosis of RA is not one which should mean the end of your normal life and i've just had foot surgery as I walk a lot and long distances as well, and in the short term its inconvient but its the long term gain I look forward too. Learn to pace yourself and to say no as well, as its important to be aware that fatigue can be made worse by not listeneing to our inner voice. But for most people RA (including me) just meand a medication to be taken and some very minor lifestyle adjustements.

[Doughnut61 in reply to medway-lady]

Thank you 😘

[Hidden]

Doughnut61, there are kind of mini flares eg just knitting or cutting veggies, using joints, can induce tenderness and swelling that goes away in a couple of days.

It’s when the typical fatigue, pain in hands and feet then also other joints, and feeling ill sets in that a flare is in progress. Having said that, I had one very swollen and weak wrist at the start of last flare, then everything else joined the party!

Self monitoring is important.

HDo2010 can tell you about his success with natural treatment. He commented somewhere in this thread.

I would like to try that too. Still gathering info.

[Damaged]

I am positive for both RF and CCP. Ironically I developed spontaneous remission while on a drug sabbatical. The body is amazing in its ability to self correct. Nutrition is essential. Drugs are different for each of us therefore trial and error is how they try to find a combination that works for you. Nothing is more effective than a positive attitude. Develop a sense of humour and remember anything is possible if you believe.

[Doughnut61 in reply to Damaged]

Thank you so much for your kind advice xx

[beeckey]

15 years down the line and never been in remission but live in hope.Great to here of the lucky people who get there x

[Birthdaygirl]

Hi Doughnut

Diagnosed in 2012 as sero positive for both. RD started to be controlled when I was given Enbrel in 2014 and I have been in remission for about 18 months.

I still find it hard to believe and I never take the situation for granted. Every day it is under control is a gift and I am thankful.

BG

[Doughnut61 in reply to Birthdaygirl]

Bless you X each day I so appreciate when I don't hurt to much x

[Suzie0407]

I’m RF positive and strongly positive Anti CCP. I was diagnosed in June 2016 and THINK I may have been in remission for part of July and August of 2016. Currently I’m struggling to maintain a normal routine as I’m exhausted and sore in every possible joint and muscle (I have muscles and joints in places I didn’t think were possibleI 🤣). Anyways, I’m trying to stay positive and hopeful while at the same time taking it easy. Hope you are too! ♥️