bladder problems: i am on my 2nd dose of Mx and seem... - NRAS

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bladder problems

mogs231 profile image
12 Replies

i am on my 2nd dose of Mx and seem to be getting wee problems as in if i need to go i have to straight away cannot hold it and seem to be going constantly..is this a side effect or is it just me?

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mogs231 profile image
mogs231
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12 Replies

Hi, it sounds like you could have a water infection. It may be worth seeing if your GP can test a sample for you to rule it out. I had a very similar problem recently as my ra has been raging since failing Humira. Luckily it seems to be settling down as the prednisolone has helped with inflammation. Are you on weekly blood tests?

spzgirl51 profile image
spzgirl51

hello mogs231

Yes, you are not imagining it methotrexate gave me the same problem with increased urgency and frequency. At one point I needed to go every 10minutes with no ability to hold it, I even bought a radar key to use disabled loos when out. it was found that the methotrexate was causing a minute amount of blood in my urine.

i was seen by a urologist to check there was no other cause for the problem. i was told by the consultant that they see a lot of folk on methotrexate as he put it.

i was told i had an overactive bladder and told to avoid possible triggers: caffeine, carbonated drinks, alcohol, acid fruits, excessive sugar and artifical sweeteners.

I found a website online for bladder calming food which i used as a rough guide to experiment and see what helped? once things had calmed down i was able to reintroduced small quantities of difficult food. i found that mushrooms and scrambled eggs worked well for me along with blueberry drink.

ic-diet.com/pdf/The-IC-Diet...

i still take methotrexate but the frequency and urgency issue has improved.

I would definitely mention what you are experiencing to your gp and rheumy department.

I hope you find a solution too.

Best wishes xx

Witness2 profile image
Witness2

I sympathise, I avoid even simple painkillers like paracetamol because meds irritate my bladder and affect control. The day I inject my Biologic is the worst. I'm post menopause and my Gynae puts it down to a lack of oestrogen so I use cream or pessaries which help. You might be much younger in which case ignore me but you aren't alone reacting this way. I hope you find a way forward. Keep your pelvic floor toned!

oldtimer profile image
oldtimer

Are you on steroids as well? That has an effect on the smooth muscle and can affect your bladder control.

marie66 profile image
marie66 in reply tooldtimer

Really, I didn't know that! I've been struggling with urgency too I've been on mtx and steroids for 18months wasn't sure if it was meds or RA at fault.M x

mogs231 profile image
mogs231 in reply tooldtimer

no just mx

Kai-- profile image
Kai--

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💦 ☔️ 😳 ☺️

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Supplemental Kegel exercises, mogs231:

How To Do Kegel Exercises: kegel8.co.uk/articles/pelvi...

Kegel exercises: A how-to guide for women: mayoclinic.org/healthy-life...

"Kegel videos" google search results: google.com/search?as_q=Kege...

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Wishing you the best, mogs231. 🙏 🌺 🍀 🌞

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spzgirl51 profile image
spzgirl51

Hello mogs231

spzgirl51 profile image
spzgirl51

Hello mogs231

LadyJan profile image
LadyJan

Yup, I get that too on 12.5mg MTX.....annoying at times but would prefer that

than more pain.

LadyJan

mogs231 profile image
mogs231

yes thats true....keep persevering!! xx

Hobbledehoy profile image
Hobbledehoy

Hallo Mogs231. I think that alteration in urinating is a Mtx symptom we are supposed to report... Otherwise, best wishes for the journey. We're all on this highway too! Mtx takes three months to kick in, but can be very effective when you get there. Read up, self monitor, use your Rheumatology specialist nurse - she's your best friend now. x

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