Update ?

I did not submit to infusion. Dr was with pets so will call tomorrow! Clearly We have a conflict of interests. I intent to file suit against Ratchet so no more Rheumie. Also, no way I am doing anymore drugs. So that is that. I will spend several days preparing my formal complaint. I keep detailed records of everything.

I decided if my doctor stands by the nurse I no longer want her as my doctor. I also have no need of a new one. I have been taking this stuff for two years without benefit. When is enough, enough? I say now works for me.

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12 Replies

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  • Do you really need the stress & expense of a law suit?

    Stress is really contraindicated with any RD, so why put yourself through such a move which could end up with such a long drawn out procedure that you will regret your actions.

    I don't know how medical lawsuits are dealt with in Canada, but here in UK medical professionals have malpractice insurance to cover themselves, & they very rarely speak against a colleague.

    Why not take a step back.....ask around amongst friends & colleagues to find a new caring Rheumatologist, & get on with finding the right treatment for you to get on with your life without all this turmoil?

  • I approach this type of problem the same way I did discipline. I never act in anger. This is why I have not moved forward.

    I have put everything on hold until I speak with Rheumy.

    I did not need to wait with regard to infusion. She will never touch me again. Law suit would only be me venting.

    Formal complaint however is not an emotional response but a well reasoned decision to take a stand.

    She is the head nurse with thirty years experience. She seems to have forgotten her humanity. Telling me to 'handle it' when I finally got her attention was beyond reckless.

    This is not the first issue we have had. It seems we got off on the wrong foot and stayed there.

    I am aware that this means giving up my doctor. Not a decision I took lightly.

    I am going by my experience and history with this person.

    It is terrifying but enough is enough.

  • I approach this type of problem the same way I did discipline. I never act in anger. This is why I have not moved forward.

    I have put everything on hold until I speak with Rheumy.

    I did not need to wait with regard to infusion. She will never touch me again. Law suit would only be me venting.

    Formal complaint however is not an emotional response but a well reasoned decision to take a stand.

    She is the head nurse with thirty years experience. She seems to have forgotten her humanity. Telling me to 'handle it' when I finally got her attention was beyond reckless.

    This is not the first issue we have had. It seems we got off on the wrong foot and stayed there.

    I am aware that this means giving up my doctor. Not a decision I took lightly.

    I am going by my experience and history with this person.

    It is terrifying but enough is enough.

  • Thank you for the words of wisdom. I was able to calmly present my grievances.

    I stated very clearly that I felt strongly enough about it to discontinue all treatment. I was not interested in a referral.

    Instead we worked out an agreement we can both live with. She does not come near me again. I will continue MTX injections and I will decide before Dec if I want to continue.

    I did say that she was welcomed to take a chair . I think that they forget this is so frightening to some of us. I am just glad it is over. The good news , I did not need to do second Rituxan infusion.

    I need time to talk myself into it lol.

  • Wow just simply stated is I have not seen any improvement with drugs , only side effects. I agreed only because the last one went without incident. This drug is in your body six to nine months if you react it is not minor.

    They forget this is not everyday to patient. I invite her to take a seat, let's see if she can handle it! Like that would happen lol 😂

    Now I am deciding on new doctor or new approach ?

  • Dear Damaged,

    In reading all of this, and also working in the healthcare profession, I firmly believe at any point of Your Treatment you are missed treated you need to always seek another opinion. I recently did, and I found a wonderful Doctor, one that actually listened to me and all of my concerns. I was amazed by her compassion, but also taking it slow while trying to guide me with my RA. Having loss my sister recently from Lung Cancer which only developed because of the many medications she took for her Scleroderma has put such a fear in me over any medication. Your frustration and anger are like red flags, signals that guide you for seeking better care. I always advocated for my sister and fought with many nurses/doctors because they thought they were always right, when they had no clue. Now I am fighting for myself and will continue to never give up, because I will put my RA in remission.

    I pray that you get the answers you need, only do what's right for you, at any cost. Take a step back and seek different care.. just take care of you!

  • So sorry for your loss. I do feel my doctor listened and responded to my concerns.

    She truly believes this combo will work. I am happy to not deal with it for now. I am looking into genomics but it is still very new. I just feel like a bowling pin. Like I am shielding blow after blow. It is hard to keep trusting.

  • I completely understand the no trust issue. There is so many different combos out there, hard to understand which one will work for you. Do they have medical marijuana out by you? I don't smoke or anything. But I know when my sister was in her worse pain she tried some sublingual and it really helped her. It was so much better than Chemo. I am constantly looking at all Kinds of options.

  • My oral Methotrexate was making throw up, so now my new doctor said try taking it Sub O. Took my first injection today... just waiting to see how I react..

  • Yes, I use a vaporizer. I attribute inflammation control to vapo .it enables me to focus on other things.

  • That's sounds good. One of my very close friends just started to use this:

    Screenshot_20170808-184058.jpg

    CBD oil. I have not tried it yet though myself.

  • I love it. Highly recommended. It is the only natural drug I take. There are many forms. Powders, oil , eatables.

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