Facial Rash Anyone: Hi All, hope today;s sunny weather... - NRAS

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Facial Rash Anyone

dmc12 profile image
11 Replies

Hi All, hope today;s sunny weather is good for you.

I have had RA for over 25 years, diagnosed when I was 18, I have since developed RA Lung disease, eye disease, under active thyroid, sjorgens syndrome and Fibromyalgia. I have listed my conditions to ask for advice as in the last few months I am having weekly flare ups that see me bed bound for four days due to inability to walk or use arms. With these flare ups I am also getting a rash on my face it just looks like red lumps that go away when the flare ends. Has anyone else experienced this and is it part of RA? I have searched internet and found no answers.

Happy day eberyone.

Donna

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dmc12
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dmc12 profile image
dmc12

forgot to mention t the same time I have the rash my face is very swollen. I am not allergic to anything as far as I know & this only occurs with flare ups. Hormones have been ruled out so have hives as it is not itchy.

trish1957 profile image
trish1957

I have RA and recently developed Lupus which comes out on a facial rash. I would speak to your consultant.

Trish

dmc12 profile image
dmc12 in reply totrish1957

thank you trish, my mum keeps asking about this as I have a relative who has Lupus and I have always tested negative for Rheumatoid factor. Did your treatment /medication chnage much when they diagnosed Lupus? Not seeing my speacilist until July as constantly rebooking apts and although I am supposed to be reviewed every 3 months it will be 12 months by the time I see Rheumy again!

trish1957 profile image
trish1957

That's crazy waiting so long to be seen. I wasn't given any different medication after being diagnosed with Lupus although I was taken off biologics and now just take 25mg methotrexate. Good luck and I hope you get the answer soon.

Trish

Philip profile image
Philip

Its not a shaving rash is it?

Philip profile image
Philip

Its not a shaving rash is it?

I suffer that sometimes.

dmc12 profile image
dmc12 in reply toPhilip

I hope not philip as I dont have to shave my face . Lol

Donna

Philip profile image
Philip in reply todmc12

Oops sorry lol, not thinking again lol, did it make you smile a little? 😂

dmc12 profile image
dmc12 in reply toPhilip

Hi Philip, I had such a good laugh about it, you brightened my day, thank you.

Ange2016 profile image
Ange2016

Hi Donna. I have exactly the same problem. Lupus has been ruled out and after seeing an allergist I've been told that I am allergic to the preservatives in drugs so all my medication was stopped. Unfortunately I have a number of conditions and one of them, the medication cannot be stopped. They are now trying to find medications that don't contain preservatives. I am due to start Enbrel injections next week that I have to mix myself so fingers crossed it works. May be worth asking if you could be tested for drug allergies, but be warned that it may be a struggle getting the tests done. My first referral to Immunology was rejected but fortunately my Dr's were persistent. Hope you get some answers soon.

Angela

dmc12 profile image
dmc12 in reply toAnge2016

Thank you Angela and I hope you too get some good results soon. Enbrel was great for me but unfortunately it lowered my immune system too much and I was taken off it due to repeat chest infections. It did work really well on RA though.

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