Hi All, hope today;s sunny weather is good for you.
I have had RA for over 25 years, diagnosed when I was 18, I have since developed RA Lung disease, eye disease, under active thyroid, sjorgens syndrome and Fibromyalgia. I have listed my conditions to ask for advice as in the last few months I am having weekly flare ups that see me bed bound for four days due to inability to walk or use arms. With these flare ups I am also getting a rash on my face it just looks like red lumps that go away when the flare ends. Has anyone else experienced this and is it part of RA? I have searched internet and found no answers.
Happy day eberyone.
Donna
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dmc12
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forgot to mention t the same time I have the rash my face is very swollen. I am not allergic to anything as far as I know & this only occurs with flare ups. Hormones have been ruled out so have hives as it is not itchy.
thank you trish, my mum keeps asking about this as I have a relative who has Lupus and I have always tested negative for Rheumatoid factor. Did your treatment /medication chnage much when they diagnosed Lupus? Not seeing my speacilist until July as constantly rebooking apts and although I am supposed to be reviewed every 3 months it will be 12 months by the time I see Rheumy again!
That's crazy waiting so long to be seen. I wasn't given any different medication after being diagnosed with Lupus although I was taken off biologics and now just take 25mg methotrexate. Good luck and I hope you get the answer soon.
Hi Donna. I have exactly the same problem. Lupus has been ruled out and after seeing an allergist I've been told that I am allergic to the preservatives in drugs so all my medication was stopped. Unfortunately I have a number of conditions and one of them, the medication cannot be stopped. They are now trying to find medications that don't contain preservatives. I am due to start Enbrel injections next week that I have to mix myself so fingers crossed it works. May be worth asking if you could be tested for drug allergies, but be warned that it may be a struggle getting the tests done. My first referral to Immunology was rejected but fortunately my Dr's were persistent. Hope you get some answers soon.
Thank you Angela and I hope you too get some good results soon. Enbrel was great for me but unfortunately it lowered my immune system too much and I was taken off it due to repeat chest infections. It did work really well on RA though.
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