I've seen the rheumatologist once , a disinterested locum who 'diagnosed' palindromic rheumatism and the specialist nurse twice. In my last phone conversation with her I said I was concerned I wasn't being treated effectively, not along NICE guidance lines etc, particularly as my anti-CCP of 298 indicated I may have a more aggressive disease. Im a MH nurse consultant and my dad's a pharmacist so well able to make sense of research etc and draw my own conclusions. At which point she said "well you've been a busy girl, do you want to put my uniform on!?!" Needless to say I sent off a long complaint letter!
I had a message left yesterday to say my appointment in two weeks with the nurse has been cancelled and I have been given an appointment with the rheumatologist next Tuesday.
All great but of course I'm anxious there'll be retribution and want advice on how to handle what could be an awkward meeting?