quick follow up after my appointment yesterday - NRAS

NRAS

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quick follow up after my appointment yesterday

Geordieland profile image
14 Replies

Met with my Consultant and am now going to give leflunomide a go ! 10mg once a day - just keeping everything crossed it helps and I avoid the nausea I experienced on previous medication 😩 ! Was a bit concerned when he said if this doesn’t work then we’re stuck !! I just smiled sweetly and in my head I was shouting “ I don’t think so ! I have info about other meds to try “ Thanks again to all of the replies and info following my previous post - watch this space 😜

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Geordieland
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14 Replies
bpeal1 profile image
bpeal1

Methotrexate made me feel very nauseous but I take 20mg of leflunomide with no side effects at all. Hope it’s the same for you.

Geordieland profile image
Geordieland in reply tobpeal1

That’s so good to hear 👏👏 Have got my positive pants on so hopefully it’ll work for me 👍

medway-lady profile image
medway-lady

It never made me feel sick but did make the RA worse after awhile then it just worked and no RA symptoms at all. I used take at night with a full glass of water.

Geordieland profile image
Geordieland in reply tomedway-lady

Thanks 😊 thought I’d take it in the evening after my meal - good to hear it took your symptoms away 👍

Gnarli profile image
Gnarli

Fingers crossed that it's 'the one' for you. Yes. I was given the 'we're running out of options' speech too. Unlike your good self the voice in my head used a very rude word

Geordieland profile image
Geordieland in reply toGnarli

🤣🤣🤣 oh there’s lots of those in my head too !

Mmrr profile image
Mmrr

I've had horrible side effects to most RA meds...except leflunomide and 🤞 for you too.

Geordieland profile image
Geordieland in reply toMmrr

Thank you 👍 !!!

SheilaT3271 profile image
SheilaT3271

Good luck with Leflunomide. I really hope it works for you.

Geordieland profile image
Geordieland in reply toSheilaT3271

Thank you ! X

Leics profile image
Leics

Good luck hope it works for you and you don’t suffer any side effects. 🤞

Geordieland profile image
Geordieland in reply toLeics

Thank you ! X

junik53 profile image
junik53

Hi it’s odd isn’t it ,but my consultant said much the same and I wondered why there was no mention of a biologic med,maybe they are trying to save money ,ha ha not at my expense and pain Thankyou. I am going to suggest it on my next visit the devil that I am lol

Geordieland profile image
Geordieland in reply tojunik53

😂😂 they won’t get us ! ( the cost might tho 😩 !) will try leflunamide and then we’ll see 😊 Good luck and let us know how you get on x

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