Appointment with Rheumatology nurse: I’m back home now... - NRAS

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Appointment with Rheumatology nurse

Summerrain14
Summerrain14

I’m back home now after my appointment with the Rheumatology nurse. Been given a steroid injection to try and calm this flare up down and advised to not overdo it. Learning that balance between not overdoing it and resting is a fine balance. My rheumatology nurse is going to give me a call in the next week to see how I am doing and will talk to my consultant meantime about my medication and will bring me back into clinic sooner rather than later. Fantastic support from my rheumy clinic. Have been seen within two days of contacting them, given a steroid injection and will be in touch regarding longer term plans for my meds for managing my RD as current regime just not quite controlling things.

17 Replies
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Hurrah. Good news. Xx

I am feeling so fortunate with the fantastic care I am receiving from my rheumy team. My friend came along with me this morning and he was saying how good the team were and how supportive and understanding they are. I wish it was like this for all of us and appreciate just how fortunate I am. Steroid injection already helping which is great. I do feel ill but definitely nothing less stiffness in my joints from this morning. x

I agree ! Couple if days you should feel better but rest still!! My team are fantastic too x

I will definitely be taking your advice about resting! Fleecy blankies, wheat hot water bottles and Netflix is all part of the plan 😊 x

So not netflix and chill...netflix and heat 😂😂

🤣🤣. I can’t seem to get warm at the moment. So Netflix and heat! Sounds so wrong. 😂

I believe Netflix and chill is even naughtier! 🤔😉

Ritasue2018
Ritasue2018
in reply to allanah

Netflix and Heal!

allanah
allanah
in reply to Ritasue2018

😍😍

Always good to hear of positive experiences, we need more of this for all. Hope things start to improve for you. Take care

Definitely Pippy. I wish it was like this for everyone. I feel so lucky to have such a fantastic rheumy team looking after me. I am starting to feel the benefits of the steroid injection already and hoping it provides the relief needed until my team can decide on the way forward for my RD meds. My RD meds are helping me for sure but may just need tweaking a little to reduce my flare ups. x

👍result!!! Once you have confidence in your team it makes all the difference.. managing RD so difficult I struggle as the goal keeps moving 🙄🙄🙄. Rest now

Summerrain14
Summerrain14
in reply to J1707

I have began to appreciate just what a great team I have. I am so with you about the goal posts moving with the RD. Resting never comes easy to me but have been snuggled up on the sofa all afternoon with my fleecy blanket. Unheard for me as I am one for constantly pottering about. Being sensible and finally listening and taking the advice that I need a bit of rest at the moment. It is learning what works for us isn’t it? I try to battle on but have finally started to accept that this is not the way forward with RD. Need to learn the balance of keeping moving but resting too. x

J1707
J1707
in reply to Summerrain14

Your getting there 😜 your sofa will be like mine soon.... lovely indented shape of my bottom 😂😂😂.. bet you feel happier now x

Summerrain14
Summerrain14
in reply to J1707

🤣🤣. I am feeling happier that I have reached out and asked for some much needed help instead of doing my usual oh well this must be what it is like and it will pass. Feeling happier that I have noticed some benefit from the steroids too. Know it is not the answer but a useful solution whilst my team look at the best way forward with my RD meds. I do feel unwell in myself, like I have flu but know I don’t and it is a flare up. I have complete confidence in my team and appreciate just how quickly I have been seen and treated. It is awful reading some posts where people are having really long periods waiting to be seen. Not through the fault of their team, it seems that there is a real shortage of rheumatologists. I remember the first time of meeting mine and feeling a little

Intimadated and overwhelmed. I have learnt over the last six months though just what a fantastic rheumatologist she is. Thanks to you and others on this lovely forum I am beginning to accept my diagnosis and know that there is light at the end of the tunnel. It may be a bumpy road sometimes but we can travel it together. Really hoping your antibiotics start working for you and Monday brings some positive news for you. x

Hmmm fleecy blankies!

Excellent! 😁

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