Undiagnosed and misunderstood x

It's me again. Seem to join this site every now and then when my resolve is low. Pain at present is quite severe but have some new symptoms that you might be able to reassure me about. When l stand up l get shooting pain from the soles of my feet also very tight so painful running down the side of my foot.

When l sit down l get a sharp pain this time going up my spine from my cocycx.

At night when l lie down l get a tightness in my chest. Can't sleep despite the number of pills l take but can drop off during the day without notice which is a little unnerving.

I am forgetting words which have meaning in a sentence including peoples names. I know l have the answer but can't seem to find it to complete my sentence which is really annoying and a little scary. Still no diagnosis as such just query possible MS scribbled across my notes

10 Replies

  • Sorry to hear you're having a rough time. Sending you lotsa healing hugs 😘💝😘

  • MS hit me hard in 1990, i was one of the lucky few people that it just went away after a few years. Anyways, MS does not cause pain, just numbness, pins and needles, blindness, virtigo, etc. You can have a sensation of an electrical current running up your spine if you move your head back or forewards too fast, but no pain whatsoever. MS can also cause loss of bladder & bowel control... so I don't understand why your doctors would say possible MS?

    I do hope they find out soon what is happening to you. Maybe just start all over with a new doctor? You shouldn't be suffering so. It just makes me sad that you are hurting. Please keep intouch.

    I wish you the best


  • So sorry you do not have a diagnosis. It is so very frustrating and makes you feel like you are wandering in the wilderness. I hope that you get some assistance soon.

  • Sorry I can't help you with medical advice. I hope you get some answers soon. Not knowing is one of the most difficult things to cope with. All the very best and loads of hugs.

  • It hurts me to hear of people suffering. I have had my extremely low points, so I know what it can be like. I argue strongly that dietary changes can help for someone with the motivation. I do this both from personal experience and also from reading the first hand reports of significant improvements from many others each and every day. So if you are interested just search diet above, and come to your own conclusions.

  • Hi, so sorry to hear you're going through this, big hugs xox One thing you said did strike me though, the first symptom I had with my arthritis was a sudden (month or so) onset of painful heel/ soles of feet. I didn't even think of arthritis to start with, but apparently it's a classic symptom of Psoriatic Arthritis (which I have). It got so bad I would be hobbling in the mornings...

    I hope you get a diagnosis soon xxx

  • I too have very painful feet and RA I have however recently been diagnosed with osteoporosis might be worth checking out Good luck

  • Feet are a major problem for me too, it's so very difficult getting around. I have RA wrists worse, closely followed by feet! Hope you get it sorted soon. M x

  • Hi Anne51 - you don't have to wait to visit until you are worse =). We are happy to have people here when they are feeling better too...

    What are your docs saying about a diagnosis for you? They can't possibly know what to treat without that I wouldn't think, and it sounds like your pain is not under control either... I am so sorry for what you are dealing with..

  • Dear Annes51,

    I do think you should see your doctor again. It is the worse when we do not know what is happening to us. Sending my big hug to you, dear.

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