Sophie 17: Have been on leflunomide for 4 weeks now... - NRAS

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Sophie 17

Sophie17 profile image
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Have been on leflunomide for 4 weeks now also take prednisone has any one experienced very strong pins and needles also numbness in their feet. It keeps me awake at night I feel my feet are on fire some times.

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Sophie17
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6 Replies

I had this very badly with sulfasalazine. It was like horrendous nerve pain all over my body. Had to stop drug in the end.

I've n

Been on lef for four weeks, and don't get it do bad now.

in reply to

Apologies for typos! Sausage fingers!!

MickeyJoints profile image
MickeyJoints

Oh YES!

I'm on LEF too (about 6 weeks on 10mg - soon to be upped to 20mg) but my hot and aching feet have been around longer than that. That nocturnal foot-fire is such an annoyance, isn't it?

Others have reported foot-fire too, so I'm not sure it's specifically LEF related - could be for you, mind.

With the pins and needles, usually indicative of restricted blood flow or crimped nerves, like the sciatic nerve. Do your feet feel cold to touch? Have you changed your posture at all?

I've noticed that pain causes me to stoop, roll my shoulders forward and my gain has changed due to foot pain and not being able to weight-bear on a flat foot. This has caused a rippling effect of muscle tension all up my back. With all that, there is an increasing level of tension up my back and into my shoulders.

Some folk, with a change in posture, might have tension around the sacroiliac joint and into the glutes, causing other issues like poor blood flow or muscle tension around nerve pathways.

Others may have better ideas!

medway-lady profile image
medway-lady

I've been on LEF since Oct 2015, did have side effects of acute joint pain after about a month or so then it vanished, this medication is wonderful for me and put the RA into remission. So life is normal once again, she said with a horrid bug at the moment; around here nearly everyone has it, had it or will get it. So not taken it since Sunday ! So having RA does not mean you don't get other issues as Mickeyjoints has said. If in doubt ring the hospital or talk to your GP.

MickeyJoints profile image
MickeyJoints in reply to medway-lady

I read that it can cause exacerbation of symptoms before feeling fine - you might have mentioned it previously I think, @medway-lady. I hope so as I'm having the worst pain in hands & feet - ever!

medway-lady profile image
medway-lady in reply to MickeyJoints

Thats exactly what happened to me really awful agony. I cried my hands were so bad, ice packs and heat packs etc, loads of paracetamol, so you have my sympathy and talk to the RA team if in any doubt. My pain lasted about 2 weeks then gradually lifted.

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