Hi everyone - feeling frustrated and wondered if anyone may be able to help?
I was diagnosed with AS 2.5 years ago following several years of being treated separately for Uvieitis / ibs / various pain which made me feel like a hypochondriac when tested for anything.
I have regular depo mendrone injections which really help with the pain.
I was started on sulfasalazine which was aweful and made me feel worse than ever, improved within days on stopping.
This week at my app I have had full blood screening again and X-rays (which generally show not much!) to be started on biologics in the next few weeks.
I am HBL-7 neg.. I don't see my pain as being arthritic .. it's hips/back/eye/shoulders/chest but it hurts to touch on my skin and the pain is so immense but my inflammation markers are never high. When I'm flaring ibs is really bad.
The pain increases so badly at night especially when my hips are bad.. days more subtle.
Always tired and My memory is bad and I have regular bouts of depression - I would put my symptoms more down to fibro than AS - I have voiced my concerns to the hospital but there doesn't seem to be any specific test to say either way.
I don't want more medication to treat joints when it's not my joints!
If anyone could shed any light or advice I would be most grateful..
I have spent 2 years reading medical papers and trial results but symptoms from person to person are so different and symptoms overlap..?