Down day : Definitely having a down day. My mtx was... - NRAS

NRAS

37,228 members46,078 posts

Down day

Amhoarten profile image
5 Replies

Definitely having a down day. My mtx was stopped 8 wks ago as my Rheumy said as I was getting side effects and my levels were good we should try stopping meds and seeing if the lid had been put on for mow. In the mean time I started a new job in and A&E. So the first 6wks no meds were great. No problems. Since then I get flares daily in different areas. Can be my wrists then next day my shoulder then next day my jaw. None of which last more than a few days but are extremely painful. Because of these random flares I've had to have three days off my new job on different occasions. So I worked a night shift last night. All was well until about midnight then bam. My knee flares. I worked through and thankfully had an IM steroid set up for when I finished work. I'm meant to be working tonight but can't stand let alone work in a busy department on my feet for 12 hour. I've been back on the mtx for 3 wks now so hoping for a settling of my Symptons soon. Kind of worried about my job though. Anyway while phoning to say I wouldn't be in yet again I just melted down into a complete mess. Pain, tiredness and generally feeling a failure has taken over.

Sorry for the long post but kind of needed to write.

Written by
Amhoarten profile image
Amhoarten
To view profiles and participate in discussions please or .
Read more about...
5 Replies
popsmith1874 profile image
popsmith1874

Hopefully the meds kick in soon, i don't envy you having a heavy job and a great service you angels provide for the public, I've been off since February after struggling on and off for the past year and finally got medically retired this week, but starting a Biisomar Benelpali same as (embrol) this week after failing 3 dmards so if I get back too some normality I will try to get something part-time , hope you feel better soon

Amhoarten profile image
Amhoarten in reply topopsmith1874

It's so hard isn't it battling to have a kind of normal life and managing pain and horrible meds.

It's a job I've wanted to do for many years as for a Health Care Assistant in A&E I can get involved in so much. It is very hard work though. Normal shift I can knock up 9 miles easy. Currently looking at other options in the hospital but feel gutted that I'm finally getting to do something I've wanted to do and it will be taken away.

It's a long road for sure and I've only just started and still coming to terms with it all.

Hope you get all your meds sorted and things settle for you.

Caspiana profile image
Caspiana

Hello Amhoarten . What a rough time you're having. I'm sorry it's so tough right now. Melting down into a complete mess was probably quite needed to get this stress out of your system. I really hope the meds help you soon and you can get some much needed rest. Sending you a hug.

Cas xx 🌺

Amhoarten profile image
Amhoarten in reply toCaspiana

Thank you Caspiana xx

Karen77 profile image
Karen77

I can sympathize as I am in much the same situation. Had to stop MTX back in March (last dose was Feb 29) and flares started in much the same way in early/mid-April. I'm still waiting for a normal lab test to be able to start something else. Good luck to you and gentle hugs. Karen

Not what you're looking for?

You may also like...

alibonura

hi im new on here, hello everyone im Ali, i am 47, ive had RA for 7yrs ive been on salazopyrin...
alibonura profile image

FESTIVE UPDATE!!!

Hi All Hope you are all well? I've got that viral infection that seems to be going around. Gp...
sciqueen profile image

Is it down to cost or how server you have RA.

Hi everyone hope you are having a pain free day..........I know i had a excellent experience with...
shirlthegirl profile image

Home Delivery Service

Does anyone have their meds delivered? I ended up having my MTX delivered by the HomeService,...
Seffarig profile image

Sulfasalazine added to the mix😒

Hey peeps, I went to see my rheumatologist today as an emergency case. My crp was up its highest...
Moomin8 profile image

Moderation team

See all
KateL-NRAS profile image
KateL-NRASAdministrator
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.