Hello to you all and thank you.: This is my first ever... - NRAS

NRAS

36,994 members45,712 posts

Hello to you all and thank you.

gibbo61 profile image
3 Replies

This is my first ever post and just thought i would say hello to you all, and thank you all for the information you put up, and sharing your experiences;-0 I joined in Jan/Feb this year and your posts and information have helped me understand my ra.

For the last 7 months I have been on one hell of a rollercoaster. My dad pssed away in November 2015, and 6 days later I was rushed to hospital in an ambulance, my whole body had swollen up and the only part of my body I could move without any pain was my head. Totally terrified, my mind going off on all tangents and after numerous xrays, scans, blood and urine tests, I was diagnosed with ra. What a 'mindF**k'. Having taken very few pills in my life I am on so many I'm sure I rattle when I walk;-) I think, (though on bad days its the opposite). I am coming to terms with my 'condition/illness/new body', and trying to embrace it rather than hate it. Since diagnosis I have had 3 bad flare ups,where I am completely incapacitated. For me stress seems to be the main cause of a 'flare up', and something i am trying to control, but anything can set my stress off lol. I just want to thank every one for their posts as this has helped me alot;-0

Written by
gibbo61 profile image
gibbo61
To view profiles and participate in discussions please or .
Read more about...
3 Replies
popsmith1874 profile image
popsmith1874

Hi and welcome to the site where we try to help each other out and all understand what your going through , hopefully things are getting a bit better pain wise have a nice day xxx

rawillbebeaten profile image
rawillbebeaten

Hello and Welcome,

I only joined in Feb after my relatively settled condition went hay wire. It's great to know that you are not alone and there people far worse off than you. Also that others will race on with life given the right combination of treatment. I think stress can make it worse and that's hard to avoid. My Mum needs full time care, isn't an easy person, and is home with Dad who's 80. I share the house with them and I know having me there takes the pressure off him a little, we sort household things and shopping etc. between us. Carers do come in 4 times a day but she usually wants the commode 1/2 an hour before or 1/2 an hour after they come! Unfortunately over the last 6 months he's had to look after me as well some days, but that gives me extra incentive to get up and get on with things as best I can.

Take Care, take it easy and comes to terms with things in your own way and time. It's a body blow to know you have a life-time condition, but it is liveable with, most of the time, if you're lucky!

Best Wishes today and for the weeks ahead, where hopefully things will settle down

Michele

nomoreheels profile image
nomoreheels

Well welcome gibbo61 now you've talked to us! I hope you enjoy & join in, it is the most helpful & caring site full of lots of us dealing with the stuff we deal with. Not making a whole lot of sense today, that's how it takes me now & again, you may relate? Anyway hope to see you around more from now on.

I do hope that cutie pie is yours, gorgeous! :)

Not what you're looking for?

You may also like...

Stills disease or other arthritis pain

Adult onset Stills disease diagnosed aged 17 in 1979 now 62 and not on RA drugs just pain relief...

Methotrexate and adalimumab

I have been using adalimumab for 3 years for my Ankylosing spondylitis and it has been great for my...

Hydrotherapy pool?

Hi. I'm lucky enough to be going on a cruise, as I can't fly now as it causes too much pain, and...

guided steroid injection

I’m due to have a guided steroid injection in the big knuckle joint on my foot to alleviate pain,...

Abnormal Nrbc and liver platlet results

Hi, I've been on both methotrexate 20mg and hydrochloride 200mg for years now and bar the odd flare...