RA and hoarseness: Hi all, just found the reason for... - NRAS

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RA and hoarseness

Padram profile image
17 Replies

Hi all, just found the reason for hoarseness among RA sufferers.

rawarrior.com/cricoarytenoi...

rheumatoidarthritis.net/liv...

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Padram profile image
Padram
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17 Replies
sylvi profile image
sylvi

Wow that is something for me to digest and i will print it off for my dr.xxxx

Diddydriver profile image
Diddydriver

I found this post very interesting. Several times when using the phone, my voice is so hoarse and husky people think that I am a man. Mainly when I am tired, when talking my voice hits and misses, a bit like ( Norman Collier ). Some of you will remember him. Do anyone else get these symptoms????

Padram profile image
Padram in reply toDiddydriver

Hi Diddydiver, yes, yes, yes. So many times I have been mistaken for a man.

flow4 profile image
flow4 in reply toDiddydriver

Yes.

Diddydriver profile image
Diddydriver

That's so good to hear, I just thought it was me. I gave up smoking last October after almost 60 years and thought the hoarseness was because of that. X

Padram profile image
Padram in reply toDiddydriver

Smoking aggravates the problem. But I had to laugh on seeing your reply. It is only here that we can say we feel good that the problem is not unique to us. Don't misunderstand, I can understand the feeling of relief . : )

Moomin8 profile image
Moomin8

Very interesting! I went very hoarse a couple of years ago - put it down to teaching a difficult class. Eventually the doctor sent me to a throat specialist who put a camera down there...not pleasant at all 😯I have a nodule and had to go to voice therapy. This was a long time before any swelling/diagnosis. I did ask my rheumatologist and she said it's not related. I'm still hoarse when I use my voice for any length of time. I haven't got back to work yet (since January 2016) as my disease is still not under control.

I'm still not convinced it isn't RA related.

flow4 profile image
flow4

Padram, that is very interesting and very useful. Thank you.

Crusee profile image
Crusee

Good timing on this article.explains a lot.

Thanks Padram will read it more closely.

Crusee

XX

Caspiana profile image
Caspiana

Yes I get hoarse and have to continually clear my throat. 😑

KSee profile image
KSee

Thank you for this information. Didn't think my episodes of hoarseness and losing my voice was related to RA. 🙏🏻

bevie profile image
bevie

Thanks for these. It answers a few questions including croaky voice at times and terrible snoring!

beeckey profile image
beeckey

When people phone up they think i am a MR most of the time i just let them think it

fizbom profile image
fizbom

Thanks it's great to know you're not on your own😃

linda-5502 profile image
linda-5502

Thank you Padrum I did see this when you posted it a few weeks ago, what tests can be done to really find out if it this ???

I keep getting very hot also so will see doc tomorrow and have printed it off to show him !!!

Many thanks for responding hope you are not too bad today.

Padram profile image
Padram in reply tolinda-5502

Hi Linda, I am better today. The sad fact is that not many docs accept that RA can affect many organs simultaneously, even though RA is a systemic disorder. In fact since I don't have any swelling ever, but pain is as unbearable, I was diagnosed very late. And I am over sensitive to drugs. Plus I also have ITP, an auto immune disorder that destroys platelets. So I am unique as I don't take any drugs whatsoever. Trying the diet way and finding success.

As for tests, I don't know. Will have to check the internet for any info. In case I find any, I shall let you know.

I too have burning sensation in my arms and legs, excessive sweating, feeling cold. RA also causes neurological problems like burning sensations, tingling, numbness.

Like someone here said, RA is one that keeps giving.

Sorry if I am scaring you, but not even all the docs can agree on what complications can arise because of RA.

Most RAers are deficient in vit b, vit d, vit c and vit e. Even if we eat nutritious food, our gut may not be able to absorb all the nutrients. 60 to 70 % of immune cells are found in the gut. Since for us our immune system is already whacky, digestion suffers. And the vicious cycle begins.

Kudos to all of us who put on a brave face in spite of our bodies fighting 24/7 to destroy healthy cells.

linda-5502 profile image
linda-5502

Yep I agree I feel I cannot keep saying "no I am not well" so quite often I just say" could be better". My Rheumy said my tingling etc in my fingers was carpel tunnel after giving my an ultra sound on them so gave my steroid injections and said if it doesn't work we will have to operate SO now they are good but get tingling, pins and needles etc in my feet!! That isn't carpel tunnel !!!! Ah.......well

Many thanks though for your info it is good to know as I do not know a lot about RA and PsA

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