This is my first post here and have found reading all your posts reassuring, I don't feel quite so alone, so thank you.
I was eventually diagnosed 2 years ago after a long battle to be referred by my GP who was convinced that at 49 years all my symptoms were simply age related. According to my rhumatologist I was apparently responding well to treatment (methotrexate and hydroxychloroquinne) as my inflamation levels had dropped at last visit in October last year, although in a lot of pain in my elbows and feet, and niggles in my knees. Had surgery in November to correct toe deformity and a tear in my planter plate, and my surgeon is doing cartwheels because my foot no longer looks like it has been in a fight with a steam roller on the XRays.
However, my operated foot although more attractive, is more painful than ever, and I still need the other foot corrected, if I can bear it, so unable to walk at all without a lot of pain. I had XRays on both knees last week that have now become too painful to kneel on, and won't get the results till next week.
My GP although sympathetic, pretty much says there is nothing she can do as I am under rhumatology and receiving drugs and pain relief already.
I can't sleep due to back, knee and foot pain, and am exhausted and a little depressed after being pretty much housebound since November as I can't drive my manual car and can't afford to replace it.
Sorry to sound so negative, I keep telling myself there are a lot of people a lot worse off than me, but I am feeling rather abandoned. Has anyone else had this experience, or any advice? Thanks