hi all, hope you are all having a pain free day. I have nearly been in remission last month and was feeling great, lots of energy and no pain, well now think am having a flare up, cannot move my middle finger without pain on my left hand, it even hurts to lay it down on the covers. its swollen to twice the size and its spread down to my hand and also on my same hand my index finger is following the same path. cannot bend it without pain and my shoulder is very painful, my energy is sapped even though have been sleeping for 10 hours each night on my days off. am back at work tomorrow and am dreading it! I have had to increase my codiene intake. I was only on 30mg once a day but now am on the maxium dose age. I had forgotten how much pain I use to be in. I am not due to see rummey nurse until 20th oct. I am down to 4grams of steroids and it will be 3grams in 2 weeks until I get off it. everything that use to hurt is coming back with vengence, I have so many things planned that I want to do and now have to pace myself once again. I am sorry for moaning as I know I do not have it as bad as some of you on here, but its just so unfair sometimes! It is getting so busy at work and my stress levels are increasing with the pressure.
I do not know if any of you have had this happening, but it concerns my left eye, its going to sound werid, but i see things that are not there and have had it seems a bright light seems to be shining in my eye, when am laying in bed, I dont know if its classed as floaters in my eye but it makes you feel like something is on my face, even though I know nothing is there! This is the same eye that always gets an infection in, it starts with my left eye watering for hours then I have pain in my eye followed by googey eyes in the morning. I have been to the opticains and they say everything is ok, but that was before I started seeing things, I dont see things all the time just sometimes and its always my left eye. even now when I am writing this it sounds werid!
just wanted to tell you and see if anyone else has this happening to them.
am hoping you are all ok on this miserable rainy day, think the summer has most certainly disappeared now unfortunatley.
Thanks for listening to me rambling on.