Rosacea

[dobsey]

Has anybody got rosacea ?

Also, just been diagnosed with fibromyalgia as well as RA Is this normal

Also so exhausted now totally drained.

Up till last week cycle at 5.45 on mornings then down gym for two hours

Now can't get up at 9.00 am 😞😞

Is this normal and will it pass 😊

This illness is so horrible at times

David

[Riedenise]

I have not long been diagnosed with fibro, the fatigue is so bad. I too struggle to get up in the morning. I've been prescribed amitryptiline 40mg at night to help with sleep & the pain, but I am having to take them at 5pm otherwise taking them later makes it even harder to get up.

I have Ra,OA,Sjorgens,fibro and asthma, I rattle with pills!

I hope you can get relief. I have been looking at the Fibromyalgia action group through this site on HU unlocked, find it helps to have people to talk to who are going through I like on here with Ra. X

[dobsey in reply to Riedenise]

Thanks riedenise

[Barrister]

I have rosacea and have had it since my late 30's ( I'm now 51). It started off feeling like a severe case of sunburn on my face and the skin became super-sensitive, I couldn't use my usual moisturiser. Then the little spots appeared round my eye and on my chin, along with burning, red skin. My GP at first gave me hydrocortisone cream which made things worse but then prescribed metronidazole cream which I still have now. It works well for me. I occasionally get small flare ups but it has settled really well and doesn't bother me too much now. Clemmie

[dobsey in reply to Barrister]

Thanks Clemmie

My GP has given me the same cream

Do you use it every day or only when you have flares

It forms a skin type layer on your face when you apply it , do you find that 😏

[Barrister in reply to dobsey]

At first he gave me the gel but because my face was burning, the gel would dry and peel off so I then got the cream. Is it the gel that you have? Once I got the cream it was much better. At first I used it every day but now I use it at the first sign of it flaring up and it's generally well controlled now. Clemmie

[dobsey in reply to Barrister]

I have the gel but it dries and peels

Looks so horrible

Will go to surgery and ask for prescription for the cream

Great help thanks

Mine is not massively bad

Just spots on my nose and sometimes really red cheeks

Scared it will get worse though Frightened actually 😔

They don't know why we get it but I was reading the immune system can cause

I wonder how many people with RA or fibro have it 😏

[Barrister in reply to dobsey]

I don't have RA or fibro, I have spondyloarthrits. I read lots when I first developed rosacea and scared myself silly. I have ver slit pitting on my nose but probably only noticeable by me and the redness has pretty much gone. Just occasionally gets red now. And the burning cleared up after about 6 months to a year. Again it's very occasional. Hopefully because you've got treatment quickly, it will settle without to much hassle.

Clemmie

[dobsey in reply to Barrister]

Glad it's clearing up for you

When I first saw pictures of it the doc gave me it frightened me

Horrible pics 😐

Good luck Clemmie

[Barrister in reply to dobsey]

I hope it soon clears up for you. Good luck to you too.

Clemmie

[KB-Fibro]

Hi David.

I was diagnosed with fibromyalgia about a year ago....apparently quite common for it and RA to go hand in hand. Really difficult to tell what condition creates what symptoms, there seem to be so many.

Extreme fatigue is the one that wipes me out most days, as well as the ' fibro fog', my brain just doesn't work like it used to.

All I can say is listen to your body, don't fight against it. Rest when you need to. Find what works for you.

I'm learning to cope with both conditions, but it takes time.

In a massive flare at the moment, but doing ok.

I really hope you feel ok soon.....just be extra kind to yourself.

Kate x

[dobsey in reply to KB-Fibro]

Kate , this fibro fog

Do you forget things Like forget you made a coffee or have put things on to cook

Or driving down the road and forget how to get there for a minute. Then it comes back 😔

I forget names and things now 😔

[KB-Fibro]

Oh yeah, also I take pregablin ( Lyrica) 75mg morning and night and sertraline for pain.

I also find that swimming helps a bit.

Take care,

Kate x

[earthwitch]

Yes, I have rosacea. Mostly its just a mild annoyance, but in the past it has flared quite badly and got to the really nasty lumpy bumpy stage. Its the kind of problem where its far better to try and avoid flares of it (by identifying your own triggers) than to try and treat once it has flared, as the treatments don't always work well, and can cause a lot of side effects. There is quite a lot of info online. Unfortunately besides sun (a common trigger), alcohol is one of my main triggers, which means I really can't enjoy a drink very often. It is important to avoid it flaring as much as you can, as besides ending up with really bad skin if it does develop into that really lumpy type, it can also affect your eyes and cause damage to the surface of your eye.

[dobsey]

I don't drink Well very rarely As I drive a lot ! So can't be that

Could certain foods trigger it like fish 😏

[earthwitch in reply to dobsey]

yes, foods can trigger it. Google rosacea support group or something like that, and try to find out more about identifying (and avoiding) your own triggers. That really is a far better way of dealing with it than those creams or gels, which can cause other problems long term.

[IainM]

Hi I have RD & also Rosecea, for me it looks like I have sunburn and my flares consist of acne like spots and small blisters on the side of my nose at the top, I treat it with Doxycycline and diffirin gel, these treatments control the spots but not the redness. I recently started using marvaso gel which constricts the blood flow and the redness goes completely for 12 hours, this is the only thing that has worked for me for flushing

[dobsey in reply to IainM]

I bet RA and rosecea are related A lot of people on here have rosecea

[IainM in reply to dobsey]

Yes they can be related, Rosacea in RD can be a symptom of the of the immune system, which if we all have it then it makes sense, I also have Urtecerea which is another symptom of the immune system, I never had them before I had RD.

[dobsey]

We why don't they aknowledge it then to RA so annoying Look after yourself 😊

[KB-Fibro]

Fibro fog makes me forget everything! Names, what I'm talking about, can't form sentences.....I've even forgotten the word for words when i was trying to explain to someone that i forget words!

Kate x

[dobsey]

Wow this is what i am like

Why don't they recognise it !