Hiya all. I will write a blog about this too but I really would appreciate your comments and thoughts. I've been started on the COBRA light steroid protocol, 30mg a day for a week, then reduce by 5mg. I started to get pain and a flare last week whilst on 20mg so my Rheumy nurse opted to keep me on 20mg. Now, since being on the pred my energy levels have improved. Yes, no doubt. The first 2 weeks were great, no pain and energy...now I have some energy and some pain up to a lot of pain. BUT the biggest issue I have is insomia. Never had this before....I was still awake at 5am this morning. It's not fun. Has anyone else experienced this? Is it a fair trade off? Being able to care for my 2 year old bouncy and busy twins with energy but can't sleep at night u patio after 4 or 5 days I crash and burn into a flare up? I feel stuck between a rock and a hard place. If I reduce the steroids the pain and fatigue will come back but keep on this level I have insomia?! Feeling frustrated..
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