Has anyone else started sulfa and been in more pain than without it? I don't know if it's the progression of the disease or the medication. It would be so much more convenient if I were just crazy and making it all up. If it is the progression of the disease, then I am terrified. My pain scale is a little skewed - my '10' is having a stroke, so everything else pales in comparison. Today my hands are sitting at about a 7 and I'm going more than a little nutty. My knees click and grind and even my toes are sending little electric jolts when I walk. I'm back on prednisone, but I'm going to call my rheumy's office tomorrow and tell them that it isn't sufficient. I can survive this level of pain, but how am I supposed to LIVE with it?
I can see knuckles, which would be hopeful if they didn't HURT so ruddy much. I just want to curse and run away, but there isn't any place where I wouldn't still be me. I am in the middle of applying for a guide-dog, but I question whether I could give one the care it needs. It feels like I'm never out of flare. I guess at least I'm thorough. *sigh* And it's such a perfect day out, too.