Just wanted to say a huge thank you to the NRAS for their input at the Minerva centre on Thursday evening. My partner and I were quite dubious about attending, I am relatively newly diagnosed , and have never been one for going to seminars etc- other than work related.
Wow--- what an inrormative few hours.
Alongside people from NRAS there were nearly the "" full team"" from the centre-- consultants, nurses, pharmacists, OT'S, pysio's and administration staff. Nearly everyone of them had a few words to say-- answering questions and the like-- but what really came across was that these dedicated people really care about the patient's who suffer from this horrid condition. Ian and I left feeling much better about things - knowing that help is just a phone call away and that I am not """ just an NHS number"". I also feel so lucky to have this facility as I know many people are not as fortunate in their treatment.
HUGE THANKS again to all those who gave up their time to be there. I am sure that all those who attended will appreciate it.