Hi All, looking for some advice or other people's experiences on how proactive rheumatologists should be. I have RA since 2010 and it had been fairly under control with methotrexate, sulfasalazine and hydroychloroquinine. Anyway I came off the methotrexate about 18 months to try and get pregnant. All has been going well (apart from not being pregnant) and my symptoms haven't been too bad. In June my rheumy even said disease activity was low and I was in remission. In July I had an x ray on hands and feet and didn't think too much about it. I have had my rheumy appointment today and there is a massive difference between my July x ray and my one back in 2012. The gap between both wrist joints have gone, my toes have lots of erosion and some of my fingers are going the same way. I am a bit in shock that despite the x rays dire results no one thought to contact me back in July, so my joint erosion now will be even worse. I obviously knew there was a risk of this happening but thought the rheumy's were supposed to be monitoring me closely and I feel completely let down. They now say this will lead to deformity and pain as it progresses. The weird thing is I don't feel too bad in the joints, but am now so worried for the future pain/disability.
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