Really fed up with it all...no life as such... No energy ..is this the drugs or complaints.im in methatrexate , hydroxy, infliximub

[Trulyfedup]

And nany nany more..I feel so down and lost..on morphine today. Meant to be at a party but even get out of bed...I do paint (badly) even lost interest for that...sorry to go on but very low today than you for reading.

[nomoreheels]

Oh you really are living up to your name today aren't you. Really feel for you. Can't offer any help but to say maybe if you can relax enough to have a good sleep, maybe have a warm bath if you can get in one? Hope you do start to feel more yourself soon.

[Crazyjo]

Sorry to hear your feeling so low, it does take you there some days I know only to well. I hope you feeling a little better later, take care x

[norfolkjo]

Hugs sent virtually. Some days I feel the need to just sleep the day away and just try to face the next day as it comes. It s crap and horrible but st least u can let rip on here we all understand xx

[Barrister]

When I feel like this I just keep telling myself that in a few days I will be feeling better, mentally even if not physically. And usually I am. I really hope that you are feeling better soon. Clemmie

[Beaches2]

Hi

So sorry you are feeling rotten today, hope you are feeling a bit brighter by now. I sometimes think Sundays/ bank holidays can feel worse if you are feeling a bit down. it's that feeling that everyone except you is having a wonderful time. Best remedy for me is something good to eat, feet up and watch something good on tv or get stuck into a good book.

Total lack of energy is really miserable too. Have you had all usual tests? Anaemia, b12, thyroid? I know when my thyroid treatment is not right I feel just awful, sometimes too tired and down to even bother thinking what might be wrong and getting it sorted!

Anyway, tomorrow will hopefully be better for you xx

[allanah]

So horrid for you, sending you virtual warm pads and warm hugs. Hope it clears soon for you , hang on in there, don't get too low xxxx

[Bazzypants]

Hi Trulyfedup, Hope your feeling a bit better as the day has gone on and its been a really sunny warm one. Sad when you have bed days and your unable to do anything life is just not fare sometimes. Try and think of a new hobby that you can do from bed I like audio books they have really changed things for me you can just lay and listen don't even need hands to hold the book lol, anyway cyber hugs on there way things may be brighter tomorrow xxxxxxxxxxxx

[Chappy1]

Sorry you're feeling so bad at the moment.

Hope you soon feel better.

Carolyn

[Trulyfedup]

Thank you all for your kind replies....

[pawsed]

Poor thing Had one of those days myself when I dragged myself to the hospital for (I thought!) an appt with my specialist, to discover it was 'only' with one of the clinic nurses. Damn woman was so overbearingly cheerful that, if my hands hadn't hurt so much, I would've slapped her. Totally pointless even going, very annoying how much effort it took to get there and then having to try and give her a 'numeric value of between 1 - 100' for my pain.........really??? Sorry this wasn't meant to be depressive, just know you're not alone. Gentle cyber hugs Px

[Trulyfedup in reply to pawsed]

I've wanted to go mad a few times as well Pawsed..especially when they ask the famous question .." Now on a scale from one to ten.........."

[nomoreheels in reply to pawsed]

Just made me lchuckle with your clinic nurse tale. But then I'm having a reasonably good day. Would love to do that too sometimes!

[Trulyfedup in reply to nomoreheels]

Glad I made you smile, I hope you have a reasonable day tomorrow too.xxmary

[hatshepsut]

Do hope that tomorrow you will wake up feeling much better! Thinking of you. M x

[francherry]

Hello, I know exactly what you mean having no energy. Having a chat with a good friend might help? Agree with Beaches2 suggestions as well. I'd add listening to some wonderful music. Might be worth speaking to your specialist nurse/rheumy soon about it? I'd also recommend (if you haven't already) having a chat with your GP about the emotional side of things and possibly ask to be referred for some talking therapy (which I found really useful). I think the emotional side of RA (depression and/or anxiety etc) is just as tough as the physical side (speaking for myself) and it's helped to work on that as much as my physical health. Hang in there, things will get better. Take care x

[Trulyfedup in reply to francherry]

Thank you for your kind reply...I took morphine today to help with pain..I missed my grandsons 3rd birthday..just couldn't make it...in bed now with hot water bottle and Robert Redford (I wish) sending you smiles.Maryx

[pawsed in reply to Trulyfedup]

have you tried a wheat bag instead of a hot water bottle, less effort to get to a usable temp and (for me) moulds itself more readily around whichever blasted joint is playing up this time. I have also used a tens machine, keeps the pain manageable until the medication kicks in. Would sing you a lullaby apart from the fact people usually pay me NOT to sing lol.

[Trulyfedup in reply to pawsed]

I could try singing myself to sleep but if I fell asleep how would I know to stop singing?????

[nomoreheels in reply to pawsed]

I use one of those little electric blanket, heat pad things. They're great for wrapping round elbows, knees & I find it particularly helpful for my neck. When I'm sitting for any length of time I have an electric foot muff as my feet get cold & when they're cold they get more stiff & painful. They get all toasty warm, it's bliss!

[Trulyfedup in reply to nomoreheels]

Someone bought me a blanket (electric) that I put over my shoulders when they hurt and then wrap it round my Knesset and legs...you are right that heat is bliss...I hate this complaint...eight years now!!! Hope you sleep well...Mary x

[nomoreheels in reply to Trulyfedup]

Doesn't bode well, nodded off before & husband let me, damn! Hope you do though.

[Trulyfedup in reply to francherry]

I forgot to ask you how you are Francherry? Xx

[francherry in reply to Trulyfedup]

Thanks for asking, just seen this. I'm ok, thank you, some days are better than others. Have an ultrasound on my hands and wrists on Wednesday to see what's happened to my bone erosions- hoping they will have stabilised. Good night Xx

[julie_warwick]

sorry you are feeling so bad , this thing is truly horrible , I completely understand how you feel , sending you a hug , x

[Trulyfedup in reply to julie_warwick]

Thank you.....xxxmary

[Hidden]

Sending warm gentle hugs Mary, hope things start to improve soon. xxx

[smokin]

I've had RA for 20 years and life has been a roller coaster for me. Thinking about people that have worse illnesses than me helps me stop focusing on myself. i know there are many people out there that carry a much heavier cross than i.

hang in there and good luck!