I'm into my 2nd week of leflunomide now after coming off mtx in January due to side effects. I've been feeling ok but having a few issues which concern me. The first thing I noticed were very vivid dreams. I wake up feeling almost exhausted from them as it's like leading a full life in the day and another at night when asleep! When I wake at night it's difficult to get back to sleep also because of throbbing pains in my calves. They're not too bad but something which didn't happen prior to starting this drug.
While reading the leaflet to check out known side effects of leflunomide I noted that blood pressure should be monitored as it can cause a rise so I got out my trusty Lloyds Pharmacy monitor. I was rather disturbed to see that my usual normal 120/70 bp is now 140/93! I'm thinking this is a little high and have made an appointment to see my GP later today to discuss monitoring. Have other leflunomide users had experience of this?
So at the moment I'm feeling a little depressed about things. I think we all find it scary when starting a new drug and read all the horrible info on the accompanying leaflet. Now I'm thinking I've probably started down the route of needing extra drugs to combat the side effects of the scary drugs which I hate taking in the first place. Then I remind myself that without the scary drugs I'd probably be in a worse state and the disease itself would wreak havoc on my joints and organs so it's best just to hop on the drug merry go round and convince myself to stop worrying....easier said than done.
Today I'm taking my Dad to Broadgreen hospital as he's going in for a valve replacement op. Mum phoned yesterday with an absolutely stinking cold and agreed that she shouldn't accompany Dad to the hospital as the last thing anyone in a cardiac care unit needs is Mum's virus. I feel awful now as I know how upset Mum is and want to go and give her a cuddle but at the same time I'm scared of catching her virus so soon after starting a new drug.
There's just so much worrying me at the moment it makes my head hurt. Hoping my next blog can be a little more positive...Suppose I better get ready now for my Dr's appointment.