Is anyone taking Enbril? I'm starting it next week. I'm still in a flair up so I'm not so scared yet to try it.

I'm taking methotrexate, plaquenil and prednisone. Sometimes I think the medications are causing more side effects than the RA itself

[lab-lover]

I used to be on it... no side effects I thought it was working fine, but rheumatology wanted a better result, so I was changed onto another biologic.

[Hidden]

Thank you! Seems I always get a bit nervous when trying new drug. Smiles to you! Abby xx

[allanah]

Iwas on it and heard a lot of miracle stories. It wasn't painful and I had onside effects. Good luck, keep taking your painkillers, hugs Axx

[Hidden in reply to allanah]

Hope not bad side effects. The doc at the clinic won't give pain killers to anyone. That's a big problem with flair ups

[allanah in reply to Hidden]

Oops typo, no side effects xx they won't give painkillers ? Why?

[Hidden in reply to allanah]

I can't find you can you find me?

[allanah in reply to Hidden]

Press the envelope on the green bar above, will ahoy you your inbox. Messages will be there

[Hidden]

I have been injecting this since Dec 2012, it has removed all the intense pain that we have and my inflammation levels have reduced, however my liver at the moment is just in the 'not normal' range but nothing to worry about stage according to gp. This could well be the tablets that I take which is Leflunomide rather than the Enbrel injections.

Good Luck and I hope it works for you. x

[Hidden in reply to Hidden]

Thank you george!

[Hidden]

It sounds amazing! Are you getting any side effects from it?

Thank you very much.

Abbyxx

[Hidden]

I'm glad there's no side effects! They don't give anybody pain medication I don't know why Maybe because it's a free clinic I don't know why I don't have health insurance so I can't go see another doctor. That night I went on this form and you and everybody were so supportive man saved my life! I know you can understand a flareup with no pain medication.

[Wildschonau]

Hi I started Enbrel in October - it has been a miracle and I could feel the difference the next day. I am now pain free and with no stiffness. The only side effect are site reactions but these are smaller now and I cool the area where I am going to inject beforehand which seems to help.

[Hidden]

Well that's wonderful! I am so glad you are getting great results I hope I won't be as lucky!

Thank you so much for sharing that with me. Wildschonue, I see there is hope

[cathie]

I've been told that I can have this too now. How do you get it ? is it through pharmacy or do you get it by delivery? I'm in Scotland which might make a difference.

[Hidden in reply to cathie]

I get 8 pre filled syringes delivered to my home at a time which are stored in the fridge (I inject weekly). I started on 4 until I became established. If things are going well you can usually get a 2 hour delivery slot the night before so it is minimal inconvenience. I have been on it for 5 years and I still pinch myself at the difference it has made to my life I hope yo have the same fantastic result.

[Hidden in reply to Hidden]

It sounds like you are doing very good. I am very happy for you! I was wondering, do you get any flair ups and have to take pain meds? What other medication do you take? If the is to personal to ask I would understand. I'm just getting my mind a bit more at ease. Thank you for sharing such positive news. Abby

[Hidden in reply to Hidden]

I may be slightly different to yourself as I have Ankylosing Spondylitis not RA but before I started my injections I was almost permanently in horrendous pain with chronic spasms that were totally debilitating. I was unable to turn over in bed without crying out in pain every time but 3 days after my first injection (it was Saturday it is etched in my memory) I woke up and flipped over without thinking about it and I was so astounded I did it again to make sure I wasn't dreaming! It was nothing less than a miracle to me and it has continued for 5 years. I get flare ups but they are totally minor compared to before and I get co codamol and Tramadol pain killers on repeat prescription for when I am in discomfort but only use them occasionally.

[Hidden in reply to Hidden]

That is amazing! I am so happy for you. I hope this continues for you forever! Thank you for sharing.

[Hidden]

Well I live in Florida United States and it's going to be delivered to me with prefilled syringes. I don't know how it is where you are it may be the same because it has to stay cold not frozen but cold in the refrigerator

[LucyLocket42]

I started Enbrel this week. So only the one injection so far. I did feel a little better straight away though. I feel lighter somehow. A bit less like my limbs have heavy lead in them. No side effects so far but I know its early days. Fingers crossed for you, me and everyone on here who is battling with this horrible disease.

[Hidden]

LucyLocket42

That's great! I can't wait to start it. With all the good thing I have heard from everyone on this site I feel much better!

Thank you for sharing! I do hope it only gets better for you and all of us. XX. Abby

[Hidden]

How does the private chat work?

[Paula-C]

I started taking Enbrel November 2012. When I qualified for it I kept asking myself....Was I bad enough to take this drug?......every time we start a new drug I think that most of us worry about side effects.

However, I got so bad while I was waiting for the drug to arrive that I ended up being more frightened of it not working than of any side effects. Glad to report that the drug started working the next day, I was in remission at my 3 months assessment (still am) and I had no side effects at all.

My consultant told me that it is one of the better anti tnf's to take if it works, something to do with us making less antibodies against the drug. I can only assume from that, that with other drugs we make more antibodies against the drug which in turn will hinder it working. I did read on another forum that someones specialist nurse told them that they like us to take MTX along with these drugs because MTX helps to stop us making antibodies. I am going to ask my consultant about this when I see him next.

Hope it works for you.

Paula x

[Hidden]

Paula-thank you. That's how I feel now about taking Enbrel. This flair up I have now started Monday by Wednesday after the Er visit I wanted my life to end. Another Er visit today got some strong pain pills and feel much better. I hope it works for me too! My rheumatologist does not give pain meds. They make a big difference. I will let you know when I take it. XX

[Mtnwoman]

I was on Enbrel for a while. Dr said it, Leflunimide & Sulfar drug weren't keeping things in check, still 40% active. Except for the injection itself, I was doing ok on it. Better than others I have tried. HINT: Inject at an angle.