Hi am new

[Crazyjo]

Is anyone on biological therapy?

[aligator]

Hello &welcome

[aligator]

Sorry finger slipped!! I am on Humira & its working well for me. How about you? Hope you feel the love & support from the lovely people on this site

[Crazyjo in reply to aligator]

I am on tocilizumab at moment been on it since November last year. Not working great for me yet

[skinnycappuccino]

Hello and welcome I am on Simponi and it's working extremely well!! I do hope Tocilizumab will start working better for you really soon! Best, Christine

[Crazyjo in reply to skinnycappuccino]

It's doing something but as have RA in a lot of joints it don't seem to help all of them, have another couple of months on tocilizumab and if no better am going to try an alternative. Jo

[lab-lover]

I have just injected my 10th Abatacept. So far so good, nothing exceptional, but early days yet, I have noticed fingers haven't flared as much, so it is obviously doing something

[Hidden]

Hello

Welcome to our site, members give solid support and information, I have not taken Biologics, if you wait someone with that knowledge will be along sometime

BOB

[Bazzypants]

Hello and welcome to a happy place lol, I am on humira also it seems to be working for some of my joints but my feet and knees omg no good so far. xxxxxxx

[net2012]

Hi I am on enbrel. Just had 4th injection. Seems to be working well for me although having site injection reactions at moment, but nothing too bothersome

[Hidden]

Hi, yes I am and another candidate with Simponi

Sal

[skinnycappuccino in reply to Hidden]

Oh hello Another Simponi injectee (is that a word, haha??). Is it working for you? I'm quite interested to get to know other Simoponi people Best, Christine

[Hidden in reply to skinnycappuccino]

Hi Christine, nice to meet another simponee! It worked very wel to start with however this past four months it is not giving the protection I had and the pain has returned however in saying that it is still better than what it was to start

P

[skinnycappuccino in reply to Hidden]

Hello Poppylady Lovely to meet you, there don't seem to be too many people on Simponi! I'm really sorry to hear it isn't working as well for you anymore What does your rheumy say? Although it is working really well for me still after 18 months, there is a constant fear at the back of my mind that I might wake up one day and feel pain again!

Christine x

[Hidden in reply to skinnycappuccino]

and you Christine. See the consultant next month so will have the discussion then. I saw him in January and my DAS was higher than it was in October so now I know it is higher again I think regretfully there will be a change. I am scared of that but have to listen to reason and knowledge. I understand that fear of pain, and I think all of us with RA in remission deal with that daily and I doubt that ever leaves us

I hope remission continues for you

P

[Hidden in reply to skinnycappuccino]

Hi Christine, yes it is working well for me- do not think there are so many people on it because of the cost. I do know MSD had to agree a set price on the formulae regardless of the dosage

Wishing sunshine your way

Sal

[Hidden in reply to Hidden]

Hi Sunshine Sal- so here we are three on Simponi- so glad it is working for you

P

[Neonkitty59 in reply to Hidden]

My Consultant in Yorkshire offered me the choice of Enbrel/Humira/Simponi last year so they didn't have a cost issue in my area, but I am sure some areas have. I was almost on the brink of saying yes to Simponi but the fact it was a newer med made me go for Enbrel. I would take it now if offered but have to leave the anti-TNF's according to NICE recommendations as I have also tried Humira, and go for a B cell blocker. I know how well Christine has been on her Super Simponi! Lovely to see Christine back btw! xx

[skinnycappuccino in reply to Neonkitty59]

Hello, it's good to be back Not many of my real life friends are prepared to listen to my Simponi ravings! I wish you the best of luck with your new biologic!! Christine x

[Neonkitty59 in reply to skinnycappuccino]

Simponi Superwoman!! Hope you are still being rejuvenated on dark chocolate too! Thank you for your kind wishes. Julie x

[skinnycappuccino in reply to Neonkitty59]

Oh yes I've doubled my daily dose to about half a chocolate bar xx Maybe it's not Simponi but all the dark choc that's doing all the good stuff to my health!

Apolgies Crazyjo for hijacking your post xx

[Neonkitty59 in reply to skinnycappuccino]

Dark Choc is the remedy!! (Lindt bunnies hopping about again, too!) LOL. Sorry Jo .. we digressed a tad. Really Hope that Tocilizumab is going to kick in for you in these next couple of months.. It is awful waiting for something to happen when response is slow. Take care, Jo. xx

[skinnycappuccino in reply to Hidden]

Hello Sal So pleased to hear of your good experience with Simponi, long may it last!! Oh and thank you for the sunshine Glorious weather here!! Christine x

[knobblyknees]

Hi and welcome, Ive been on Humira since September and it started working almost straight away. Its given me my life back, (cant do everything I used to but Im not in pain and Im not stiff). In fact Ive just been driving a fair bit thinking Im superwoman and all of a sudden Im in a flare, left knee, I think too much clutch work. Anyway Ive just had my knee drained and Im back on the road to recovery again. Its hard to know how much activity and rest to have when you feel so much better. Hope it works for you as it has for me. x

[Jeanabelle60]

hello and welcome to the site. great people on here who will look after you and send you support when you are in need of a bit of TLC. i'm on Abatacept, one of the newer drugs. i have been on it since november last year and it is for me like a magic potion. i woke up one mornig, after about two infusions, and i knew something was 'different' but i couldn't quite figure out what it was......i sat on the side of the bed feeling so strange...... then i realised what it was.......i had no pain....no stiffness......i could move like 'normal' people!!!! i was so excited i foned my friend to tell her what was happening....in fact i foned loads of people to tell them. i have been the same since then. they are fabulous drugs once you get the right one. my rheumy showed me a graph of my level of inflamition since i was first diagnosed right up to my last blood test a week before.....they went from 185 in the red.....to 7 in the black.......that was some journey.....for me it has been a life changer. hope things work out well for you.

[Dogrose]

Hello! I'm on Infliximab (Remicade) it works mostly for about three or four weeks but then wears off fast, I'm having it every six weeks but I think I might be tried on something else if it continues to not work too well.

[lisalockit]

Hi crazyjo i was on Embrel for 3 years which worked really well for me up until about 18 months ago and it gradually stopped working. Was switched to Rituximab by infusion on daycase unit a year ago which worked well until xmas am now due to have my next round of this on Monday, but can say i was pleased with the results once it kicked it so probably had about 6 good months out of it. Hope that helps

[Crazyjo in reply to lisalockit]

I am on tocilizumab at mo been on it since nov, still getting some pain

[claireyj]

Hiya I'm on Cimzia along with a few others on this site - for me it's been life changing am very lucky , do worry about the possible long term side effects but the benefits completely out way the risks