I have had four episodes of tongue swelling in the last four months, the first one ending in 3 lots of adrenaline and a hospital stay. Since then it has been a case of antihistamines and a short course of steroids, whoo hoo pain free for a wee while. I have actually stopped going to the hospital now because I know how to control it and I keep the meds in the house at all times.
The consultant has basically said that it is auto-immune (really?!) and I am allergic to myself............. i.e. the inflammation etc. that is going on in my body. I had these episodes about 8 years ago before the RA started but have had nothing until the last four months. All of which makes me a bit suspicious of what might happen next! Would be interested to know of any others who have had this experience, I should also add I have hypothyroidism.