HURT........................

[sylvi]

Well here i am hurting like hell in my hands and feet. Sometimes the pain is not too bad, today my ankle and hands hurts. I could cry i am that worn out with the pain............

[allanah]

Oh deAr, I know u can't have Cimzia but r they gonna give u a steroid or something, it's gone on a while hasn't it x

[Hidden]

Poor you. I sympathise. What are you taking for the pain?

[sylvi]

I am on sulpha,cocodamol mtx and pregablin and anything i can lay my hands on tonight. I am on steroids Allanah,i am usually coping pretty well with the pain,just not tonight. I am sorry for having a pity party.xxxx

[claireyj]

Sylvi I was like this last week , I just couldn't take anymore , cried buckets and I think with losing my lovely Nan and the funeral as well my body just flared. I couldn't walk and stairs were impossible - I'm 43 and felt 83 and just so bitter all this is happening its so horrid isn't it ....I went to hosp for a check on Thursday and they gave me a steroid jab just to tide me over while the Cimzia works. Can you ask for a steroid injection just to give you some relief as somtimes it all gets too much xx

[sylvi in reply to claireyj]

Claire they won't give me the cimzia again as it is too toxic for me though i benefitted while on it.I have had a crying session already.I think i will have an early bath and get into bed..I am spending too many early nights in bed just to rest.Hugs to you Claire i know its not a very happy period for you.xxxx

[Jill60]

((((((Hugs Sylvi)))))) xx

[sylvi in reply to Jill60]

Thanks Jill,.xxxx

[Hidden]

Hi Sylvi, I am having a pity party over here in this corner, Allanah said she would bring the gin, I will provide the fresh orange....good for hangovers, and you can come over and join me.

We are all entitled to feel this way and tomorrow we simply get up and start again....please be kind to yourself tonight and thank you for your support earlier

Penny

[sylvi in reply to Hidden]

Poppy i will join you and Allanah you can keep the gin i will bring the lollipops though. I am going to soak in a radox bath and go to bed. Thank you Poppy.xxx

[Hidden in reply to sylvi]

Lollipops are my favourite....enjoy your bath and sleep well x

[sylvi in reply to Hidden]

My favourite is Callippos and i have loads of them in the freezer.xxxx

[miss]

Oh sweetie not nice big hug coming your way xxx

[sylvi in reply to miss]

Thanks sweety.xxx

[mattcass in reply to sylvi]

Hi sylvi Hope you get some sleep, sending hugs & xxxx. Matt/Fraan

[Hidden]

Hi Sylvi, Hope you feel better soon, in the meantime thinking of you, Take care, lynda x

[sylvi]

Thank you all,i am sure i will be brighter tomorrow.xxx

[Hidden]

Oh dear Sylvi, it sounds like all that pre-wedding busy-ness has caught up with you poor thing

The only thing to do when you feel like this is to take yourself off to bed, keep nice and warm and sleep:-}

Cece x

[sylvi in reply to Hidden]

Cece i intend to do that shortly.xxx

[Hidden]

Sorry to hear your having a really bad day. Hope it clears up soon, have they mentioned any other biologics seeing as you are unable to have Cimzia?

[sciqueen]

Try & rest up as much as possible

Sending cyber hugs ((((x))))

Joanne

[Hidden]

Take care Sylvi x x

[sylvi]

Thank you all,i did get to sleep,but the pain in my hands and feet forced me down here for a cuppa and some more pain killers. While the pills are doing their job i will be on here and then i will nod off in my chair later. So thanks everyone and hugs back at you.xxxxx

[KevinTG]

I have recently started to manage my diet for three reasons: one to reduce pain, to relieve stress from whatever and three to reduce my weight. I am three days into a high healthy oil diet eating 3 ounces of nuts - walnut, almond and pistachio mixed -, portion of spinach, portion of oil fish; salmon, mackerel etc., glass of orange pure juice, and one portion of oats. All the above I eat each day. I am no expert but speak as I find after three days my pain relief is fantastic and I am able to refuse my pain killers.all in the mind some say and I don't care, it's working for me. Good luck whatever your choices are.

[sylvi in reply to KevinTG]

I am pleased it is working for you, you will have to keep a diary and then post your progress and let me know how you get on. Well done you.xxx

[Hidden in reply to KevinTG]

Hi Kevin,

This is interesting. I've got to get back on track with my eating habits again. So would love to know how you get on.

I'm ashamed to admit that I'm still waaaaay to heavy for my poor bones and only making it worse for myself.

Somehow you'd think that I'd be able to find the incentive to, at least, do my bit towards regulating the pressure I put on my joints but I keep going back to the sort-term comfort kick. There is obviously some sort of emotional attachment in my case so any inspiration you can offer to break the cycle would be great.

Judy

[KevinTG in reply to Hidden]

I have always had to monitor my weight, weighing in at 22 stone when I was 10 years old. Most of my adult life I have followed various diets but have found the weight Watcher programme has always been the most successful. 5 years ago I had a serious accident, about a year after I had been diagnose with RA, and it has taken me this long to learn again how to walk, write and do all other social activities. Just over a year ago I weighed in at 20 stone again because I had been living a completely sedentary life with no movement hardly at all and eating like food was going out of fashion! I have caught up with my RA status now and lost 3 stone by joining the Weight Watchers team again. This oil enriched diet was an attempt to manage my diet better and the effects of it on my pain regime is surprising, so a double whammy. I intend to keep it up and reach my goal of 12 stone and hopefully better movement and less pain. I know it gets tedious when we here, 'only you can do it!', 'I know how you feel' (when nobody knows how you feel!), 'well unless you loose some wait you'll have to live with it', but when we think about it on our good days, they are right in many ways. So, on my good days I do all that I can to help myself and on my bad day I totally spoil myself. Good luck with your journey. Kevin

[Hidden]

Hi Sylvi,

I haven't opened fb yet so catching up here. How are you now? Not in so much pain I hope.

[sylvi in reply to Hidden]

First of thank you for asking after me. I am very tired as i have been down here since four this morning. I still hurt but i don't think i am in as much pain as i was last night, just hope it doesn't turn out the same tonight. How are you this morning.xxx

[Hidden in reply to sylvi]

Good thanks Sylvi. I had to force my way out of bed after a restless night. So now on here practising delaying tactics as there are 101 things to do and very little energy to do it with. lol x

[summer32]

Sylvi.. hugs ..been off site missed all commotion helping my chap move out of his house!!!

[sylvi in reply to summer32]

You best be pout of what went on,i never saw it either though i have heard. Where is your chap moving too Summer.xxxx

[lorann]

Hi sweet Sylvi, I just met up with you on FB, so hope things settle down as the day goes on. Have a nice relaxing Sunday afternoon

[sylvi in reply to lorann]

You too Lorann.I have answered your message darling.xxx