Post MTX day :(

Why is it that some post MTX days are ok while others are lousy?!

I'm having a "lousy" post MTX day today, I haven't done anything different from other MTX days so not sure why some are good & others are not!

Hope you're all ok!!

[cathie]

I know what you mean, I'm finding it hard to do things today, post mtx

[hamble99b]

I have to take mine over two consecutive days [as many do].

I was sleepy, muzzy and nauseous when I took it at once.

sandra.

[helixhelix]

Odd isn't it? I've spent ages trying to work out the difference between weeks....was I more tired, had I eaten earlier, etc etc etc. But it just seems to be random for me. Most weeks I'm just a bit groggy and slow to get moving, but some weeks I feel like shit all day. Makes planning anything on post MTX day hard... Polly

[Hidden]

I'm glad I'm not the only one who has weird post MTX days!!!

[DavidT]

Same here some weeks fine, other weeks total rubbish tired and nauseous

[jenwight]

Same here ever since I started MTX a few weeks ago I have had dreadful nausea, (sometimes lasts 2 days) tiredness and find I am very restless, unable to settle to anything, the day after I take it but Today for the first time NO nausea, feel pretty rubbish but the relief at not feeling sick - oh and like my dogs I appear to be moulting !!!

Jen

[Hidden in reply to jenwight]

Oh dear re the moulting!! but glad you're not feeling so bad today - do you take Folic acid? Initially I took just 5mgs 48 hrs later but it was increased to 5mgs for 3 days after MTX & that has certainly helped.

[jenwight in reply to Hidden]

Hi yes I do take folic acid just 5mg 24 hours after the mtx, am trying not to panic about the hair yet ........as I have very thick hair and every year for as long as I can remember my eczema gets bad in October and I seem to loose some hair then as well so am hoping and praying that's all it is

[lovingit in reply to jenwight]

Hi,my 2nd week of mtx,but I take 6 days of folic acid NO side effects as yet

[Hidden in reply to lovingit]

[Kittykatxxxxx]

I don't know its weird that everytime I take it is different for me had a bit of nausea last week for the first time x

[getridofmypains]

been on mtx for a month now dont seem to be helping the pain up to yet but not surprised as none of the others help neither. cant really tell if there is any other effects from them as always tired and drowsy from other meds and condition. also been on enbrel for the past 3 months not working either

[Hidden in reply to getridofmypains]

Oh dear I can empathise as I still have a ot of pain although on MTX, Sulfa & Hydroxy. My rheumy thinks that my RA is in remission but the rest of my pain is mechanical ie OA

[getridofmypains]

my reumatologist said that once i start on the biological treatment id be able to do pretty much anything ? seems to me things have only progressed as all joints are now effected but suppose it dont help that been having problems since a child and doctor told my parents that im lying so never went to a doctor again for years up until 5yrs ago ended up going hospital as couldn't walk was told then it was sciatica. i just don't think some doctors continue with updating there knowledge which should be standard practice i find older doctors know less as younger doctors are fresh with knowledge my new doctor just was not convinced with the sciatica diagnoses sent me for all the right tests and now found out its A.s i have. how long have you been using MTX ? i was told can take up to 12 weeks to work iv only had them for 4wks but they said the same about embrel injection and nothing only thing that takes the pain away is steroids