It's official! I'm in remission. Just got back from RD&E Hosp and pleasant trip to Teignmouth. My DAS score which indicates level of disease activity now below 1 and the magic remission line. Fully functional once again thanks to a new miracle biological wonder drug called TOCILIZUMAB. Still got to have the monthly infusion but this may soon change to a sub cutaneous injection. Piece of cake.
So a potted history goes a bit like this Diagnosed March 09. Less function than a baby and lots of pain, stiffness and swelling in all joints. Couldn't get up from a chair, in or out of a bath, turn a tap, dress, drive the car, walk to shops, go up stairs or do any normal household chores. Prescribed the dreaded methotrexate in May followed by hydroxychloroquine addition which gradually got me back to a reasonable state without any of the known possible side effects until last Xmas when I had a nasty chest infection which sent the old immune system into overdrive once again and things started to go downhill. That's when the hand of fortune took over and the chance to have Tocilizumab as part of a trial to monitor methotrexate withdrawal. I felt the effects inside two weeks, incredibly quick as these things usually take time. I wanted to share this with you because there is so much negative stuff out there and patients really need to hear the other side more often. There is hope and the prognosis for the future of sufferers of this serious, debilitating, destructive, life threatening condition gets ever better with every new discovery.