Foot health survey

[EmmaS-NRAS]

You are invited to participate in a survey about your views of foot health education for people with Rheumatoid Arthritis (RA). Foot health education may be provided by any health care professional including podiatrists/chiropodists, Specialists Nurses, Rheumatologists, Physiotherapists, Occupational Therapists and Orthotists or it may be that you have found out information for yourself. It can include foot health advice and how to look after your own feet, as well as how RA and your medication might affect your feet in the future. The survey has been developed by Andrea Graham, Lecturer in Podiatry at the University of Salford as part of her PhD project.

The aim of the survey is to investigate if people with RA receive foot health education, who from, what kind of things you want to know about your foot health, when you want to receive foot health education and what kind of things stop you from accessing foot health information/education.

The study requires you to complete an online survey. The link to the survey is highlighted below. The survey is completely anonymous and does not ask for any information that will identify you as an individual. Your participation is entirely voluntary, but your views as a person with RA are valuable to us. Instructions for how to complete the survey are provided once you click on the link. It should take no longer than ten - fifteen minutes to complete. Completion of the survey implies that your consent has been given. The survey will be available to access from the 26th September and will be open for the next 8 weeks.

Survey weblink: survey.bris.ac.uk/salford/r...

This survey is aimed at people with Rheumatoid Arthritis (RA) only – if you are a health care professional or a carer/partner of a person with RA, then please do not complete this survey. If you know anyone who has RA who might be interested in participating, please feel free to pass the survey link on to them.

If you have any questions about the survey, please do get in touch with Andrea Graham using the details below:

Andrea Graham, Lecturer in Podiatry, Directorate of Prosthetics, Orthotics and Podiatry, School of Health Science, Allerton Building, University of Salford, M6 6PU.

Tel: [phone] E-mail: [e-mail]

Thank you for your participation and time,

Emma

NRAS Membership Supervisor

[Hidden]

I'm so glad you're doing this, I'm going to fill in the survey right now. My feet and ankles are my worst affected joints. It's taken 4 years for my rheumatology team to even examine my feet; they kept sending me to the podiatrist or orthotist claiming it was osteoarthritis but I'm only 25! I had to go privately to get MRI scans on my ankles to 'prove' that I did have active synovitis and not OA. Finally, they've started taking note of my feet and now, they examine them when I go to my clinic appts and finally, they agree that I do have active RA in my feet.

[allanah]

I agree with fruity , thank you for researching this, my feet and pain are the bane of my life and largely ignored by Rheumy team, they are not on the DAS score so they r not interested.

[Neonkitty]

Yes my feet and ankles are constantly stiff, painful and immobile no matter how much physio and exercise/rest. They won't behave. I will do the questionnaire too, thanks.

[somo2430]

Hi Emma,

I tried to submit the survey twice but unsuccessful. The following message appears

Bristol Online Surveys (BOS) home

Unfortunately an error has occurred

Warning: Your responses have not been submitted.

If you are trying to submit a large quantity of text into a BOS survey, or are pasting text from Microsoft Word into a survey, it can cause this error. Please see our FAQ explaining how to fix this problem. Until you have corrected this error as explained in the FAQ your responses will not be included in the survey results.

If you have not typed a large quantity of text in to BOS or pasted any text from Microsoft Word, the error could be caused by a technical issue. Please report it to: [e-mail] with the following information:

1.Time and date that you received the error

2.The survey that you are trying to complete

3.The point in the survey that you reached before the error occurred

We are sorry for any inconvenience caused.

[EmmaS-NRAS NRAS]

Hi Somo2430,

I'm sorry you are having trouble submitting your responses. If the FAQ hasn't helped, can you in the first instance contact [e-mail] as it instructs and in the meantime I'll contact Andrea, who is leading the survey and see if there is a more general problem with the survey.

Many thanks

Emma

[oldtimer]

I've filled it in. I'm feeling quite cross that feet are not considered in the disease assessment and the health professionals are not interested in my feet!

When I asked to see the podiatrist at the hospital she just gave me general advice (well, more of a lecture) about not wearing high heels (which I have not done for years except for one off special occasions anyway.) So I'm fixing up to see one privately to see if she can help with the foot and ankle pain.