Biologics and feeling so cold

As most of you regulars know for the moment I am in a special place where a treatment has been found that is stopping my RA in its tracks. It has been fairly quick for me, by comparison to many, and so for me is extra special.

I have found recently that I am so cold, in fact tonight am sitting with a blanket over me, heating on, scarf around me and a big fleece on and still i am shivering. I am not in the North Pole but Scotland and I know we have to cold however it is not that cold here tonight. I do feel ok and am simply tired

Is it simply the RA or could it be the biologic - is anyone else experiencing this?

All of you stay warm

Katie x

21 Replies

oldestnewest
  • My hands and feet are constantly cold,since starting mtx.also when I am really tired I am very cold.take care Michelle xxx

  • Thanks Michelle, maybe that has just answered my question

    Xx

  • Well the biologics are obviously working hard at doing something inside you, so maybe this is part of it? If your inflammation levels have suddenly dropped thanks to miracle drug perhaps your body needs a day or two to adjust thermostat now you don't have raging inflammation keeping you warm? But as always , probably best to check if you are still shivering after 24 hours? Polly

  • Well the biologics are obviously working hard at doing something inside you, so maybe this is part of it? If your inflammation levels have suddenly dropped thanks to miracle drug perhaps your body needs a day or two to adjust thermostat now you don't have raging inflammation keeping you warm? But as always , probably best to check if you are still shivering after 24 hours? Polly

  • Polly- had not really thought that process through and maybe you are right . Will mention to nurse next time we talk

    Kate x

  • Ye I was so hot during my flare and then felt cold after my biologics! No pleasing us is there, but do check your not getting an infection or something!!

  • Allana, thought about an infection and for the moment I feel ok, no sore throat or anything. I am glad someone else is feeling the same after biologics and am certain that is what it is, hot water bottle tonight then

    X

  • Never be certain with me lol! Do get checked but I have a electric over blanket which is my saviour, cos I like the heat when I'm flared( I know weird) and the heat when I am cold, so it was a great buy for me xxx enjoy the water bottle !! Xx

  • Am liking the electric over blanket- feel a purchase may be necessary! X

  • Hello Katie,

    I'm on biologics too, 6th injection this week. I feel cold from time to time, particularly hands and feet, but I feel cold all over like you when I'm tired. I don't associate it with Enbrel because I've had this problem since having RA, so I think in my case anyway that it is part and parcel of the condition. Enbrel is taking it's time to work for me, I'm either mid flare at the moment or my immune system is fighting to stay in control, because the pain in my toes, ankles and knees has been worse since starting the injections. But, on a positive note, I am not as tired as I usually am. I read through Enbrel notes last night and it says be patient because it can take a few months to get RA under control. So, I must be patient !! Sending warming thoughts to all :-)

    June xx

  • heating was on and I WAS SHIVERING NO biologics.. in tropical gloucestershire!

  • Summer can just picture you in this tropical heat wave, shivering and lips blue with cold. So sending huge gentle warm hugs xx

  • Hi i am only on mtx but feeling the cold even when others in house are ok. May be if your still cold get it checked xx

  • I am beginning to think the cold is yet another symptom of the disease process- well hey ho something else I have to deal with, same as all of you. Will get it checked if it continues into next week

    Xx

  • Hi Katie, I've just been given the go ahead to go on biologics.....and hope it works for me as it has for you. I'm very excited about starting the treatment.

    I have though felt both hot & really cold (if that makes sense!) during a flare up...and really achy as well.....sometimes it's almost identical to flu symptoms....which I think is all part of the RA.

    Hope you manage to warm up.... :)

    xx

  • So excited for you- and I do so hope you get the effects as quickly as I did. I am by no means in remission however the improvement has been tremendous and find myself looking forward to the next dose, 22 days to go

    Stay in touch and let us know how you are doing

    Xx

  • Hi, I am on Humira and MTX and am always chilly or cold! I sit in cardigans and blankets often when I am in the house. Never thought it was anything to do with RA - just that I had a faulty thermostat! I get cold in bed too - takes me ages to go to sleep as I don't seem to generate any warmth. I wish someone could just turn my internal thermostat up a few degrees ;).

  • I did notice I was cold in the winter and simply put it down to the cold weather, however now it is warmer and the room thermostat sitting at 16-18 degrees in the evening and I am sitting all wrapped up as if it is winter. I have seen me even resort to wearing socks in bed to try and get warmer. I think this cold now is more to do with the biologic that I am on- certainly not a complaint, I can put up with this if my disease is calming down. Hope you manage to stay warm today xx

  • I'm the same but only on injectable MTX. I was even cold last year when in Tuscany in an October during a heat wave! X

  • Looks like winter woollies for you and me this summer xx

  • I always feel really cold, jumpers even in summer, if we have one! and lots of layers in winter and I still feel cold. Don't take biologics do inject MTX

You may also like...