GP has softened the blow for me.: HI there, I have my... - NRAS

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GP has softened the blow for me.

mattcass profile image
11 Replies

HI there, I have my 1st visit to the rheumy in the morning and my GP has told me that in betweeen the e-mails he has read the only RA medication I can receive will be be done intraveniously but any side affects that may afffect my lungs and this will stop, And the only course left which has been discussed with RA consultant my chest consultant and his Professors in Edinburgh will be to advice me on a lung transplant.There was no mention of this in January so I take it the last CAT scan showed the lungs to be worse than the time before.Im glad he told me this it has given me a chance to talk to Fran and my son instead of hearing it tomorrow first hand ,But Frans says they know best.

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mattcass profile image
mattcass
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11 Replies
sylvi profile image
sylvi

Mattcass,you sound quite positive about this and i applaud you in that as i would be terrified so good on you. It is a hard road your on and all i can do is wish you well and hope you have a happy outcome.xxx

I echo Sylvi you are a brave man and the consoling thing is that the have found you a treatment x

cathie profile image
cathie

Hope it goes well

Are you at western general? Thats where i go, message me if you ever want to compare notes

mattcass profile image
mattcass in reply to cathie

Hi Cathy thank you, I am at St Johns Livinston I had the option to go to the WGH but I stay i West Lotian, i do come from Edinburgh its a high class area Muirhouse and West Pilton, Hee-Hee

cathie profile image
cathie in reply to mattcass

Oh yes!!!

That's good news Mattcass, although its sounds fairly scary re the lung transplant but I reuse this might well be life changing in a very good way. As the others have said I think you are very brave and wish you much luck with your appointment today. Tilda x

sammiebabe70 profile image
sammiebabe70

, I would be scared stiff at the thought of a transplant and you sound so positive about things, good luck with ur appointment today x

allanah profile image
allanah

Hi, I am so glad at last u have the information u need! It's been a long time coming and I am glad that the consultants at last got their heads together! So u have a bit of a climb ahead of you by the sound of it, but at the end of the day it will improve your quality of life to be out of pain and able to breathe.

Good luck with the docs today and when u get a chance let us know how u r getting on!

miss profile image
miss

Hi Mattcass i take my hat off to you. Like others have said you sound very positive off the outcome yesterday. Very good luck to you my thoughts are with you. xx

Craw profile image
Craw

Hi Mattcass

Hope your appointment goes well today.

It is scary having lung problems along with RA and I am having lung problems myself but no way near as severe as you.

I hope the RA treatment works for you.

Its a lot to think about having a lung transplant.

My thoughts are with you.

Mary x

bencar profile image
bencar

HI Mattcass,

I'm sure your attitude will help (+ your meds. of course) to make life a lot easier for you. Hope this RA treatment works and you do not have to go down the road of a lung transplant. Keep posiive, my thoughts are with you and good luck with your Rheumy visit.

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