Marginal zone splenic NHL : Hi just... - Non Hodgkin's Lym...

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Marginal zone splenic NHL

laylalulu profile image
9 Replies

Hi just wondering if anyone else has this cancer. The outcomes of all your stories are inspiring. I'm on watch and wait. 2 years since diagnosed . Praying for many more

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laylalulu profile image
laylalulu
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9 Replies
alicata1943 profile image
alicata1943

Yes I do. I was diagnosed February 2012. I was on the watch and wait until July 2016. I had 4 infusions of Rituxan and I am now in remission. I am now don't maintenance infusions of Rituxan. One every 2 months for 2 years. I just had my first one Wednesday October 12th. I was told that this is a slow growing cancer. With Rituxan it goes right to the cancer cells in the blood. I didn't need a port. No loss of hair. Wishing you well.

laylalulu profile image
laylalulu in reply to alicata1943

Thank you for your reply good luck with your treatments 😊

alicata1943 profile image
alicata1943 in reply to laylalulu

Thank you.

laylalulu profile image
laylalulu in reply to alicata1943

Hi again, did you have your spleen out as a first treatment? Also if you don't mind me asking did your bloodwork show that it had reoccurred? Thank you so much, hope your feeling well

alicata1943 profile image
alicata1943

No I still have my spleen. I am in remission after having 4 treatments of Rituxan . I am now doing maintenance treatments very 8 weeks for 2 years.

laylalulu profile image
laylalulu in reply to alicata1943

Oh I see, thank you

Calipewings_2016 profile image
Calipewings_2016

Hello. I was just diagnosed with Marginal zone. I need more testing to determine my treatment plan. How often do you see your oncologist with the 'watch and wait'?

laylalulu profile image
laylalulu in reply to Calipewings_2016

Hi I am on yearly checkupscwitj bloodwork every three months

laylalulu profile image
laylalulu in reply to Calipewings_2016

Was your spleen enlarged and did you have it removed yet? Good luck

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