I recently registered for a webinar with the PKD Foundation (USA) 'Understanding your test results' even though this was in America I found it very interesting and made a lot of sense.
Since then I have gone to their website and found more webinars around PKD, I am currently listening to 'Pain in PDK' I would advise you all to go and listen to this it is great. I intend to tell my consultant that claims I have no symptoms of the disease and that the pain I am suffering is not related..... Sorry mate but according to this webinar YES IT IS!!!!
pkdcure.org/learn/multi... These are free to listen/watch