Feelings after CKD

I just found out we can share our feelings too here its not for asking questions so I think everyone who is suffering from CKD feels lonely and alone at a time period coz after CKD life is changed everything is turned upside down compromising in health, diet, I cant go out and cant eat with my friend what they eat and cant make any weekly plans coz of dialysis so my friends just left me my girlfriend left me sometimes it feels like I am a burden for everyone. But if we see good side i make some new friends in Dialysis centre but they all are 40+

[gretazreta]

CKD can be very isolating, simply because you are alone in your body which is doing it tough. But you are not alone! Is there a support group in your area? I am sure you are not the only younger person going through this. It is hard to reach out to people but it is worth doing it - I have found people (sick or not) do want to help. I have found it useful to try new things as well - this is sometimes tiring but definitely worth it. Your life has challenges but it is just beginning. Wishing you all the very best.

[Hidden in reply to gretazreta]

Thank you very much for your kind words

[Beachgirl32]

they say depression is quite normal with kidney disease I’m sorry you had to start dialysis so young . Talk to your social worker at your clinic I’m sure she or he can find you some help. If you are religious person find a church with people your age I know my church is a great support to me

Wishing you the best in this journey of life

[Hidden in reply to Beachgirl32]

Thank you very much for your kind words & I will surely find a church near me but i dont know anything about christian community

[Eyak1971]

Thanks for sharing. That was brave which tells me you are yes depressed but looking for a way to move forward. Being young with any disease is much harder because it is unexpected at a younger age and you have not had those life experiences that make you stronger where you see again and again a cycle of misfortune followed by fortune. As you age you have many of these experiences. My suggestion is to find a good therapist or listener to verbalize your pain. It is real but it cannot dominate your life forever. You as many young people have much to give yo the world. Find what that is and you will find others. Many with hardships in their past. Take care and continue to share with others. You may facilitate other young people to open up.

[Hidden in reply to Eyak1971]

Thank you very much for your kind words & I think this is my place to open up

[Transplant2018]

CKD and dialysis are very isolating, particularly when you are young. As others have said, I suspect there are support groups where you would find other people your age who would understand your situation. Be certain to not be passive but actively seek a living donor so you can get off of dialysis and back to going out with your friends again.

[Hidden in reply to Transplant2018]

Thank you very much for your kind words

[CKD2-4]

Hi. Kidney solutions from what I’ve been told has a weekly support group via zoom. You might check out their website. Also NKF has some great call in support if you look on their website .

[Bax509]

It's so hard and I'm sorry you are going through this. I will echo all the others to reach out to local support groups possibly through your dialysis center. But please know that there's a lot of people here online that have understanding of what you are going through and can be great sounding boards for you. Best of luck to you.