Kidney transplant is at gfr 15 percent dont want any dialysis

[jennifer24]

Hi everyone happy Easter, hope everyone is well so I'm already at 15 % gfr and so worried I do want to get in dialysis I want to go straight to the transplants . I when to recently get blood work at my gyno and it should my gfr 15 % but I have a cold and was a bit dehydrated since I drank k 2 bottle of water only. So scare to go to My kidney doctor and him wanting to put me on dialysis I don't want any symptoms thank God just lost weight and feel tire . What you guys think and whats ur advice I would truly appreciate

[ShyeLoverDoctor]

You have the right to refuse any form of medical treatment, including dialsysis. Some people after years and years of dialysis, choose to stop it and pass away.

GFR is not the only hard and fast indicator of when to put patients on dialysis.

There are plenty of doctors who want you to start at GFR 10, not 15. Who gave you the number 15?

Here are the conditions that need urgent dialysis:

1 Uncontrollable high blood pressure. Kidneys regulate blood pressure since they regulate fluid in the body.

2. Serious electrolyte imbalances

3. High potassium. Also called hyperkalemia. It’s a killer because it will disrupt heart rhythm. You probably have a mild form of it already, but I can’t say.

4. Uremia. Uremia is a syndrome with many components. It basically translates as urine in the blood. You are being poisoned by your own waste. That’s why you are tired. Uremia will eventually cause nausea and affect your thinking process. When that all gets bad enough, you need dialysis

You need to look at your bloodwork, all of it. For example, I didn’t start dialysis until my GFR ws 6. No, I wasn’t about to die that day, no urgent need for dialysis. (Dialysis is life support by the way). However I was so weak I could barely walk, bad metal taste in my mouth, nauseated. My potassium was still OK. Blood pressure still ok. I felt like crap and I said I want to start now. Looking back, I am angry my doctor waited so long. I see why doctors want to avoid it but they need to think of the patient.

If your GFR is sinking fast, I urge you get a fistula. They take 3 weeks to develop and be used. Some people get a fistula and never even use it, because they get a transplant. If you want PD, the other form of dialysis, that only takes a month to heal. If neither of these are ready for use, they will stick a tube into your jugular to save your life to filter your blood and you don’t want that. Then they can put in a chest catheter, but that carries a high risk of deadly infection, and they will try to persuade to get a fistula instead.

Doctors LOVE a patient with a fistula, trust me.

If you’re not on the transplant list, you should be. You are eligible once GFR drops below 20. You don’t just get on the list, you have to apply and do many tests and can even be rejected. It takes months. You must qualify for the list even for a living donor transplant.

Questions? Go to kidney.org they have a hotline.

Good luck.

[jennifer24 in reply to ShyeLoverDoctor]

Thanks for your responds and im process already for my second kidney transplant my husband will give it to me he already did blood work so we are starting the process

[Beachgirl32 in reply to jennifer24]

That wonderful that your husband going to give you a kidney . I know anytime I’m sick with anything the transplant center makes me inactive and if I’m on medication for the sickness they say that could mess with the immunosuppressant meds they give you I was severely dehydrated that made me inactive so I would contact the transplant center cause it could take awhile for them to set up an evaluation you are able to tell them when you are available get your neph to refer you . In the meantime waiting for appt may your health return to your normal .

[BulldogFan]

My daughter's GFR hovered between a 10-11 for two years but we managed to stay off dialysis. We did an extreme diet makeover for this entire time, scrutinizing everything she ate and we stuck with it. We worked with our transplant team's nutritionist and educated ourselves. It helped that we were already trying to eat organic, non GMO foods. It wasn't easy but we voraciously watched her intake for a variety of factors. While this worked for us, it may not work for everyone. It definitely takes a lot of discipline. We hope the best for you.