Has your transplant team given advice or... - Kidney Transplant

Kidney Transplant

1,859 members835 posts

Has your transplant team given advice or suggest anything about the COVID-19?

Dna4christ
Dna4christ

Hello,

I'm wondering if any transplant centers have addressed the coronavirus issue because my doctor hasn't given us any warnings or such. Thank you~

35 Replies
oldestnewest

I've not heard anything from my center, but my family doctor said anyone like myself that are taking meds for anti-rejection that lower your immune system should be extra careful around people that may be sick, and it would be wise to wear a mask when going to crowded places. I had my transplant a year ago.

Okay thank you for your reply. I get stares wearing masks in public 😅

Dara3351
Dara3351 in reply to Dna4christ

Let them stare! When the H1N1 virus was going around I was in Japan and all were wearing masks. I am a flight attendant and seeing people wearing masks on flights is not new!

Dna4christ
Dna4christ in reply to Dara3351

Haha thank you!! I will bear the many eyes upon my beautiful face 2😁

Not a word from the transplant center. Of course, we should use common sense and continue to practice the safety procedures transplant patients use daily, but an acknowledgment of the situation or assurance would be nice.

Yes!!! A word of cautious or assurance would be nice from my doctor, but as the problem escalates, nothing. Anyways, common sense and distancing will help us get through this!! Stay safe~

Ive seen my transplant team the other day and they advise me not to do any travel at the moment since its more risky for immuno suppress patients.

Wearing mask, hand washing, avoiding crowds and be very careful.

i have a hard time finding good face mask atm since everywhere is sold out. lol.

im 7 month post transplant.

Cazzy41
Cazzy41 in reply to Trouper

Saw face masks on EBay if that helps x

Trouper
Trouper in reply to Cazzy41

They have but they are using it to make money now. The vogmask for $44 is on bid up to $159😪. Crazy

kimosabi1961
kimosabi1961 in reply to Trouper

Have you tried Amazon? The CEO has said that any seller that is found to be price gouging on masks will have their accounts terminated.

Trouper
Trouper in reply to kimosabi1961

I will definitely check on it. Thank you!

Cazzy41
Cazzy41 in reply to Trouper

I’m in the UK and EBAY is selling 24 masks and sanitiser for £26.99 free postage x

Bsasup
Bsasup in reply to Trouper

harriscomm.com Canadian company has masks. I use these because my wife can see my lips, she has a hearing loss. But I find people do better with them as they can see your emotions

Dna4christ
Dna4christ in reply to Trouper

Okay sounds about right! I feel as if I am quarantining myself without even being sick .. gotta do what we gotta do! I cant find masks either. I just happened to save one that my sister got me many years ago.. :( homemade masks?

Trouper
Trouper in reply to Dna4christ

Try etsy. They sell some masks as well but not as good at vogmask or cambridge.

Dna4christ
Dna4christ in reply to Trouper

Aww.. I wander when they'll restock vogmask. I just found out about them and all gone lol

Trouper
Trouper in reply to Dna4christ

They restock it yesterday. I was on it by the time they said it will come out but few mins later its “all out of stock” again lol..

Cambridge are taking pre order but wont sent it till may now.

Dna4christ
Dna4christ in reply to Trouper

Oh .... I wish they give all transplant patients masks for freee 😂

Dara3351
Dara3351 in reply to Trouper

Amazon has everything

Dna4christ
Dna4christ in reply to Dara3351

My go-to.. did order some disinfectant wipes but they canceled my order saying no longer available 🤦‍♀️

WYOAnne
WYOAnneNKF Ambassador

My transplant center sent out an email to all recipients regarding the CORONA VIRUS. The main thing was to let all of the hype settle down and suggested not to travel out of the USA for right now. The fact they brought out....corona virus is new, but many more people have died from the flu this season 18,000 in US.

Went on to say that hand washing is the best preventive measure.

Dna4christ
Dna4christ in reply to WYOAnne

Yeah.. I guess the panick that's happening around me is causing all the hype. Seriously, disposable wipes been wiped out of our local walmart shelves!

My team simply said hand washing and a mask for travel and there was nothing else they suggested. I also get stares and laughs when in a mask but I have fun with it. I draw fangs on the mask, big teeth, vampire teeth, shark teeth or sometimes I write "COOTIES" on it, and other times I write TRANSPLANT so people quit looking. Ha ha!

That's a great idea!!! TRANSPLANT!! STOP STARING 😁😁

Trouper
Trouper in reply to Dna4christ

Lol! Yep!

Haha! Yep i got those stares also. I got me me a “sorry new BEAN” on my black mask just for them to quit looking

I ordered a box from Amazon at the start. Was canceled by Amazon 2 weeks later. I have some on order now expected delivery end of March. Yesterday I went to my dentist for my usual six month check up and I admired the technician’s. We started a discussion about my concern as a kidney transplant patient and how they just aren’t available and she gave me several that they obviously had a good supply of.

I haven't heard anything except you common sense and try to stay away from crowded places.

We spoke to our team and the ONLY thing you can do is wash hands and use alcogel , masks make absolutely no difference at all unless you wear full on masks, the n95 ones only last 8 hours so you would need thousands to get through this and they are in short supply for the hospitals who actually need them!! If your team are worried they will get in contact with you like they did with swine flu!

Dna4christ
Dna4christ in reply to Sparklyjo

But still, I would think masks are better than anything? When I received my first transplant, I had to wear them everday for a year or so. Hopefully, this outbreak passes soon!

My Transplant Team just offered to issue me a letter stating “work from home”. Other than that yes - everything that everyone said above. Just be extra careful!! Let’s hope all of us get through this quickly and safely.

Dna4christ
Dna4christ in reply to shash8363

Yes I pray that this outbreak ends soon!!

Not a word. A little disappointed with that.

Dna4christ
Dna4christ in reply to Baxter26

Aww. That is a little disappointing. Are you guys doing teleconference at least?. My doctor has resorted to that and when I asked about the covid_19, he said we need to take extra pre-caution being immunocompromised. We can get very sick, and he has patients with covid at the moment. Told me that it was real which I know!

Our transplant team has. Teleconferencing is pretty cool! No more driving 30-45 minutes in the am...I have had one with my Nephrologist and my regular Doctor. Next month with the liver specialist!

You may also like...