I just received a transplant at January 1st this new year. What a blessing.
Most verything is coming along fine. lots of adjustments again, but that is fine also.
Trying to make sure to take care of myself and my new partner kidney, i am looking for a transplant dietitian . To my surprise it is not easy to find one. My hospital does not have one, while the surgery was excellent.
I live in san Francisco. Would anyone knows how to find one or any source? Appreciate your help.
Thank you
Ken
Most dialysis centers have a dietition that might help or talk to you transplant team, I do protein with complex carbs & cut out all or most simple carbs. I'm 7 yrs post transplant. GOOD LUCK!
Thanks for your info much. I will look into ucsf and Stanford . Hopefully I can find one there.
Talking about simple sugar, since i am diabetes and my doctor said i have a catch 22 problem: need to gain weight but avoid high sugar.
Simple sugar is almost everywhere. It is not easy to avoid most of them...what is your formula?
May God keeps blessing all of us.
Thx much again.
I've been diabetic since 1989. I basically use the ATKINS diet. I do mix in fruit, nuts & occasional chocolate sometimes. My A1C is 6.7. At dialysis for almost 3 yrs, the dietition said I was the star patient. I won the contest monthly for the best albumin. I admit I cheat occasionaly. I blame it on the prednesone as it makes me crave carbs. I've never had to gain weight, so I don't know how to help there. I check my blood sugar 4 times a day. Get a carb counter book & see how many carbs are in all foods & you will be surprised. If you have any other questions ,feel free to ask. This works for me, and everyone is different. Atkins does make you feel more energy, less gas, sleep better. eliminates some pains & controls your A1C. I wish I knew about it before I became diabetic. once again GOOD LUCK
Wow. Love to learn from the best, Only way to learn.
I was lucky during dialysis, the treatment rinsed away my sugar , cholesterol , and gout problem. Maybe that is why i got a transplant easier. Lucky me
With my blessed transplant, my diabetes may come back ..but no medication yet. I want to keep it low and i will get the carb count book and doing some homework..
Talking knowing about these knowledge before. I guess This is another example of "if the youngs only know, and the olds only can"..
We are those who knows now, and with the blessed transplant, we still can...
I am 72 . This is my new life 😇😇😇
Thanks for sharing again. Looking forward to learning to you.
I don't know if I am the best, but this works for me. I have learned as much from other transplant patients as far as side effects etc. as from the doctors. Just trying to help anyone I can
It's people like you who has good heart that makes the world better and warmer. Are you a peer support person?
No, I'm not a peer support person, just trying to help other transplant people through my own experiences. I have learned a lot through other people & nuch reading. I am 67 yrs old
Your hard work really paid off ..i am very positive you will have many more quality times to come..
I am not eating simple sugar too much already, following your advice.
On the other hand,You must have a strong support systemm... the transplant team really looked at that during my interview.
Life is good with God's blessings.
Great---GOOD LUCK
Instead of simple sugar foods, i eat
unsalted popcorn,
no salt vegetables can soup, and
unsalted chicken noodles can soup.
I looked inti unsalted can tuna that has slight mercury.
What is your opinion and experience on them can foods and mercury..?
Thanks again
Have a nice weekend..
Believe it or not, popcorn raises my blood sugar so I don't eat it also because I have diverticulosis. I try to make as much of my food from scratch, but I do eat some canned once in a while. Anything in moderation. Dr. told me you do need some salt, but not too much. Be well!
I just learned that can industry is planning to rid off BPA. Hope that's true.
Hope this will benefit those who use can food on a more frequent basis.
So far Wild Planet, Oregon choice, and eden are the pioneers.
I forgot to mention to you that the diet I follow will reduce your dependence on insulin or oral drugs for diabetes. I never took insulin until after transplant as some of the anti-rejection drugs raise your blood sugar. If I stick to my diet strictly, I only take minimal insulin after 3 days
Good morning.
The med raise my blood sugar. Also the starchy food the night before the blood test raised it up more.
Lucky me, i just ran into a nurse who taught me to eat 2 eggs without the yoke. Add some apple. Yhat will avoid high sugar for the blood test.
Hope it works.
During dialysis, my a1c was at 6 with n ok insulin or med..
Thx
Dave,
With God's blessing, i just found a post transplant dietitian today. 😇😇😇
She showed me lots of
info about my blood test report. She gave me a B+ for a newly transplant of two month.
She pinpointed my unique situation and designed a diet for me... very common sense but effective...😇😇😇
Lucky day..
Thank you for your ideas. Keep coming.
Hi I ha da transplant nine months ago I fall on my labs on line I talked to a regular dietician on a regular basis and I do a lot of research on my own and con graduations and just use common sense and trying to find a regular dietican🙏🙏😝
Thanks. Congratulations on your transplant also. I am sure you study hard for the knowledge.
I am sure i will find one. I just Google dietitian. There are so many available..plus my previous experience give me a good foundation to carry on with this new chapter. Best luck to all of us.
So you have on line dietitian?
I found I had to advocate for my self or nothing would get done in a timely fasion😝after a while the nurses realized I knew what I was talking about not like most if he other people in my unit they where all in their 70 or 80s and didn’t have a clue what was going g on with their health🙏😝
I got lucky when i was new to dialysis 5 yrs ago. I watched this video where the speaker tell us to advocate for ourself because the staff just doing their job. He said the squeaky wheel get the oil. So i asked them questions and i got different answers.
So i started to advocate for what i thought was correct. They then seemed to respect me more later. like you, i studied a lot and learned . I thought all these hard work did help me to get the transplant sooner, with God's blessings.
AMEN 🙏🙏 google was my best friend for 7 years while on dialyses and still is to this day😝
Mercury in Pacific Northwest Seafood
God's miracles working on all of us.
I used Google to search now. Nice we got Google. Very handy if not too much information.
i'd like to ask a question about tuna and mercury. Because of my diabetes and needing to do blood test twice a week, i need fasting. If i eat too much starchy food, the morning blood sugar will be high..so i choose hard boiled egg, and can chicken no salt added.
I also looked into tuna which is fine, But it has mercury.
so far i am not eating them yet, even they have do much possible benefits. I rather not eat them yet i don't understand the mercury effects.
Maybe you can ask your dietitian while i still looking for one.?
I attached the link below about tuna and its mercury.
Please give me your opinion, if it might interest you . Thank you..
Mercury in Pacific northwest
Https://oregonschoice.com/mercury/
Thanks much
Hi my name is Dave I received a transplant 9 months ago you have to use common sense talk to your dietician the transplant diet allows you to eat a lot more foods than when on dialyses💪🙏😝
Hi dave
blessings for the magical transplant for us.
I basically applying the same diet during dialysis .except i drink lots soup now..haha..
Friday i will meet wuth a nurse practitioner who is diabetic too for dim sum. She knows what to do. I will follow her even i have some basics on them ...haha
The shrimp dumpling is very starchy, for me if i eat only 3 of them , my sugar will go to 200.
Ken
Hey I’ve had type 1 for 36 years it took me 30 to learn what to eat and what effect it will have on my gluclose some of meds screwed with my sugars the first coupel of months but I got a Handel on it. I just bought a juicer to juice different veggies celery is supposed to have amazing health properties.im going todo a lot of reaseach on the subject stay💪 😝
Wow. Glad you are handling that well.
I like research too.
I learned thatThis human body is so magical
Maybe we should share and grow mutually.
Haha...
Hey sounds good to me😝
Good ... we will share...
I e been doing a lot of reading in nutrition so I bought a juicer yesterday I’ve heard a lot of good things about celery I started yesterday we will have to see in a month or so if I notice any difference 😝
Keep me posted. Thx
Will do, have you made any changes to eat healthier?
Yes.
I am eating more protein stuff like about 8 eggs with 4 egg yokes per week, chicken, fish,
More fiber fruit/vegetables low in potassium, good carbos like beans,
1/4 oranges, 1/4 pear, etc. To avoud high total potassium and carbo.
I want to try skipjack tuna in a can but afraid of the mercury and BPA. Haha.
Limit to rice, noodle (carbos ) to 1/3 of the meal. Like we first learn from dietitian .
To fill in i am eating unsalted popcorn..
Please advise.
OK that sounds a bit more restricted than myself but I can’t follow my labs all morning so I can adjust my diet accordingly
Well. I have 2 labs a weeks now Until 6 month into it. So lots of learning and adjusting to do. haha.
I did the same guudeline for dialysis before.
As long as the numbers work. I am happy.
What makes yours less restrictive.
How long ago did u have transplant ?im 9 months post u do labs nice a month have clinic every 3 months.i was ol ea hat I want use common sense and moderation😝
Oh ok jan1stwhen I first had m translplanti was on a similar schedular as you are now but as long as lansare good you will eventually be like me labs once a month and clinicebery3 months😝
Yes. Happy new year day for me. God's amazing deed. .haha..
therefore i restrict myself more with the diet, because i am so new. Change a lots of bad habits too since dialysis 5 years ago. .
Learned my lesson. Haha. Really appreciate this 2nd chance. 😇😇😇😇
AMEN🙏
Indeed. 😇😇😇😇
I wonder what percentage kidney patients get transplants.??
Only the STRONG💪💪😝
We can choose strong/able, or choose suffer/die... i like strong/able...😇😇😇😇😇with God's great blessings...🙂🙂
It took me 3 ears to make the list while waiting my sister died 😪 a few years later I got the call on May 23rd/18 on my sisters birthday🙏🙏🙏
Wow. Moving. 😇😇
Like my kidney dr. Said about my kidney transplant "It's meant to be..".
Glad you work hard to maintain it. 😇😇😇😇😇
My DR said to me I’m a walking fucken miracle 🙏🙏😝
Hahaha...whatever you are, you are here...haha
Alive and well 🙏
So tell me what do ordid you do for a living? Are you married?any hobbies?
With God's blessing, i just found a transplant dietitian today. Lots of
info about my blood test report. She gave me a B+ for a newly transplant of two month.
Haha. I am 72 with a 24 yrs kidney. Thank God..😇😇
i work as retirement and Investment planner for people. This helps me to keep them at peace of mind. And keeping me busy. I work knly 2 or 3 times per week only.
Married and have 2 millennials boys.
About 30.
Just have a grd son. Haha. With God's good blessings. 😇😇😇
Congratulations on the grandchild 🙏 i’m a 56-year-old single male never married and no children thank🙏 The only reason I say that is because of my health whole most of my life so I don’t have to burden anybody with it but myself 🙏🙏😝
Your are just fine, unique person with certain blind spots...like all of us.
Haha, i felt the same way around age 30. no steady job, no money. No house, no nothing..so i did not want to hinder anybody..just like you.
Then God brought me this angel who changed my life. She brought out the best in me. She gave me two angels boys (men now) and one of them just gave me a grd son.
Also God gives me this kidney for a purpose (unknown). So he gives you for a kidney too. That is a purpose for you also. So share your luck and blessings with people around you. So that must be a purpose for you. ? Maybe using your health situation. but still blessed by God as with a walking miracle attitude...haha..😇😇😇
I totally agree with you no I’m here for a reason and the reason I’m still alive is so I can help others that’s why I became a mentor for dialysis patients to share my experience 😝 and I am still looking for my angel 😇
Try on line dating. Very popular now..the angel maybe there. Good luck
Hi been there done that 😝maybe I’ll try again I’m in no rush my first priority is my health🙏
Yeah. Me too..
My endurance is still short. They say in time it will be better.
I’m tired in the morning I do take sleeping pills 😝and the prednisone kicks in in the afternoon talk about enegery bursts wow😝
You control your success....that is how you got the kidney. .
Zicam post kidney transplant 
Mental health post transplant.
What is your experience post transplant?
1 week post transplant 
6 days post transplant 
