THE ONE THING....If you could give up on... - Kidney Transplant

Kidney Transplant

3,659 members2,076 posts

THE ONE THING....If you could give up one piece of advice on CKD, Dialysis, and Transplant--what would it be?

Bobbiereed profile image
BobbiereedNKF Ambassador
7 Replies

Okay--I am going to be the first suggestion here. My one and most important tip would be to WRITE IT DOWN. Keeping an accurate log of doctor appointments, questions for your care team, and what responses they give you is a must. Not only will it give you good order in your treatment/care, this gives you a working diary to help you plan on what questions and concerns you have. The information is in a safe place and not circulating in your mind and creating an anxious anxiety condition.

Now you have my ONE THING--What is yours?

Written by
Bobbiereed profile image
Bobbiereed
NKF Ambassador
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Amiller55 profile image
Amiller55

If on Diaylsis! Be compliant don’t miss treatments or leave early ever. Exercise if possible and get plenty of sleep

Charlene_Coxhead profile image
Charlene_Coxhead

Listen to you doctors and follow everything to the letter. I'm in end stage and have a gfr between 7.5 and 10% for the last 2 and a bit years and not started dialysis and they say that is because o have followed their strict advice. It's hard some days but worth every excited day I get dialysis free.

Drdetroit profile image
Drdetroit

On dialysis, keep your albumin level {protein} high { above 4.0}. After transplant take meds every day at the same time. Set your alarm on your phone to remind you to do that. NO junk carbs, only good carbs & protein. GOOD LUCK. 2&1/2 yrs on dialysis, & 6&1/2 yrs post transplant

WYOAnne profile image
WYOAnneNKF Ambassador

The one thing I learned the hard way is to be your own ADVOCATE. This is your health and your LIFE! If you don't like what your doctor is telling you and you have doubts - speak up for yourself. Make sure you understand everything they are telling you. And if you still have doubts, you can always change doctors. You do not have to keep your GP or your nephrologist if you are not happy. It is so important to have a doctor you can TRUST and one that BELIEVES what you tell him!!

bhenders1 profile image
bhenders1

Yes, be your own Advocate! Make sure you understand everything about your condition and treatment. Ask questions and take notes so you are able to refer to the notes later. If you have access to the internet, research everything! Follow your doctor's orders and find out what and how much you are supposed to eat. And the most important thing is a POSITIVE ATTITUDE!!

Bobbiereed profile image
BobbiereedNKF Ambassador in reply to bhenders1

Yes! Totally agree with you. To add to your thought---Take someone else with you to your appointments and have them be your note taker so you can focus on what the doctors and clinicians are telling you. Sometimes, they can chime in on things you might have missed or something that they thought of. Four ears are better than just two!

bhenders1 profile image
bhenders1 in reply to Bobbiereed

Couldn't agree with you more!

Not what you're looking for?

You may also like...

Post Transplant dietitian needed

I just received a transplant at January 1st this new year. What a blessing. Most verything is...

Long Life with Transplant

I get asked so often what I did to be almost 19 years post transplant. Here are some tips. - I...

The whole finding a living donor process is a JOKE!!!

What I guess aggravates me the most about being in the position that I am in, is that when you are...

After transplant - be very careful of your knees

I’m a kidney transplant patient who is extremely blessed and want to pass on info I just learned...

How do you get ESRD Medicare if you get a preemptive kidney transplant (before dialysis has begun).

Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis?...