Kidney disease

[LBatl]

I am looking forward to talking to people who understand what kidney disease means. Most of my friends or family do not understand.

[marcyc NKF Peer Mentor NKF Ambassador]

No they don’t understand, “you don’t look sick”. They don’t understand that your body chemistry is all out of balance, causing nausea, tremors, weakness, cramps, heart problems on an on. They don’t understand that dialysis keeps you alive but that it is a tough way to live. They don’t understand that transplant comes with its own challenges and is not a cure. You have to educate them. Welcome to the community. Stay strong.

[3kidney]

Hello LBacote,

Marcy is right, they have to be educated. Kidney disease is being heard of more and more and people need to know how important our kidneys are to our survival, tell people about your situation. Educate those around you so they can at least be a little bit more understanding to what you are going through.

We are here to help, welcome!

[LBatl in reply to 3kidney]

Thank you!

[Dotti55]

Believe me, I understand. While I’m lucky my family is completely supportive, friends not so much. Not understanding they got annoyed when I would be too tired to go out as often as I used to, having to be careful about what I eat...I know. Hang in there.

[anne627]

People don’t understand what they never experienced. People care,but no matter how many times you explain side effects or why I don’t eat any buffet restaurants or can’t be with anyone with a cold, they don’t get it. My real friends accept it, my husband loves me an that’s what matters. May8th I will ha e my transplant 24 years.

[LBatl]

24 years...great!

[anne627 in reply to LBatl]

Thank you.