Me too: Hi. My husband is now at 12 efrg... - Kidney Dialysis

Kidney Dialysis

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Me too

Escabeche profile image
10 Replies

Hi. My husband is now at 12 efrg annd is getting prepared for dialysis. He’s chosen to start with PD overnight, though I’m not looking forward to any alarms going off. Now, to my astonishment, it turns out I also have ckd, though only stage 3a. My efrg is now 56, having been 59 less than a month ago. Please can you tell me if this is too fast and what that might mean? My husband’s first words when I told him? “I’m not sharing my cables!”

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Escabeche profile image
Escabeche
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10 Replies
Bassetmommer profile image
Bassetmommer

Can't speak to alarm on PD, but it once you guys get it down, it works pretty well. As far as your situation, do not get alarmed at one lab. You could have been dehydrated or a different tech did the lab or any number of things. GFR normally bounces around so do not panic.

Escabeche profile image
Escabeche in reply toBassetmommer

Thanks Bassetmommer. I have had three separate tests so I’m quite sure now. I know that stage 3 is very far from becoming a problem so I’m not really worried about in that sense …

What did seem mildly concerning was that it went from 59 to 56 very fast. Less than a month. Is that unusual?

mojito72 profile image
mojito72 in reply toEscabeche

From my own experience I suggest that sharing your husband’s pre-dialysis, restricted diet will help you slow the deterioration of your kidneys.

Sapphire187 profile image
Sapphire187 in reply toEscabeche

It could potentially be different by that amount in the same day. I wouldn’t worry about that unless it consistently keeps going down more and more.

Escabeche profile image
Escabeche in reply toSapphire187

Exactly what I needed to hear!

Escabeche profile image
Escabeche

I did come to that conclusion. It’ll be hard. Thank you mojito

Darlenia profile image
Darlenia in reply toEscabeche

CKD is an exceptionally broad, generic term. It's like saying you have cancer - the specific type clarifies the situation, So, it's good to know what your underlying condition is and what items are flagged on your health reports. A diet specifically targeting those items is a great way to halt or slow the progression. (If it's diabetes, for example, the majority of one's attention goes to curbing sugars and carbs.) Also, because diets can involve manipulating electrolytes and proteins essential for overall health, it's good to have your doctor or other professionals on board to order and check outcomes, keeping your overall health in best shape possible. Please don't share your husband's diet - I did that, lowered my sodium when it wasn't needed, and passed out. Make your diet your own diet. It's good you've caught the situation early. You have a great opportunity to live a nice life.

Pontios profile image
Pontios in reply toDarlenia

Whether your eGFR is 59 or 56 you have loads of kidney function. I would not worry about it. Most of us would be thrilled to have that amount. If you want to be careful then: 1. Keep well hydrated at all time, 2. Do not take NSAIDs ever, 3. Read up on the effects on the kidneys of any medications you are prescribed by anyone before your take them, 4. lower meat consumption or better go plant based, 5. Exercise.

Pontios profile image
Pontios in reply toPontios

Sorry Darlenia, that reply was for Escabeche

Escabeche profile image
Escabeche in reply toPontios

Thank you Pontios , you’re right, of course. I do know my luck! I know how safe and comfortable I am, unlike my husband who is now at 12. It was just about the sudden speed, not the number, which is negligible.

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