new med called Xphozah and it is great for phosphorous

[Bassetmommer]

Once I started dialysis, we could not get the phosphorous to go down. Now mind you, before dialysis, it was always over 5 most times or even over 5.5 and was at 5.8 before I started dialysis. Neph put me on a binder, sevelamer, did nothing, except block me up completely. Then we tried Velphoro, and I was still climbing over 6. On top of that, I was not pooping and was not losing weight even though I was eating 800 calories or less. My dietician said it was not in anyway from what I was eating. Finally, the Neph put me on Xphozah (Tenapanor). It is a blocker, not a binder. Ad you take one in the morning and one a night. They are small pills. WOAH..... bad side effect. Real bad diarrhea for about two weeks. What I did was only take it when I was home and not going anywhere but eventually, things calmed down. BUT boy does it work great. Phosphourous was down to 4 after less than at three weeks and not even taking the two pills a day. So happy. Anyone else on it? Oh, and because phosphorous was low, my Pth was normal.... very happy.

[horsie63]

my phosphorus has a been low without doing anything except not drinking Coke. I don’t eat cheese or regular milk.

[Bassetmommer in reply to horsie63]

Well that's good. Neither did I. What was happening was that it was leaching from my bones. Hence the reason a binder was not working. I was not consuming phosphorus, phosphates additives or dairy.

[Beachgirl32]

no not on it but try the other one you did I tell you some phourous meds are expensive. I had harder time on pd with high phourous on hemo I was able to go back to tums at one time my was up to 10 I have gotten it down to 3 . Something I’m glad you found something that works for you .

[Bassetmommer]

They are outrageously expensive. I did mine through patient assistance, so they cost me nothing. This is the hoopla that people are talking about that the government wants to regulate binders. They do not want to pay for them. I do not understand why a pill is so expensive.